Common measure of quality of life for people with systemic sclerosis across seven European countries: a cross-sectional study

Ndosi Mwidimi; Alcacer-Pitarch Begonya; Allanore Yannick; del Galdo Francesco; Frerix Marc; Garcia-Diaz Silvia; Hesselstrand Roger; Kendall Christine; Matucci-Cerinic Marco; Mueller-Ladner Ulf; Sandqvist Gunnel; Torrente-Segarra Vicenc; Schmeiser Tim; Sierakowska Matylda; Sierakowska Justyna; Sierakowski Stanslaw; Redmond Anthony

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Common measure of quality of life for people with systemic sclerosis across seven European countries: a cross-sectional study

机译：七个欧洲国家系统性硬化症的人生质量的常见措施：横断面研究

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Objectives The aim of this study was to adapt the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) into six European cultures and validate it as a common measure of quality of life in systemic sclerosis (SSc).

机译：本研究的目的是将人体硬化质量（SSCQOL）调整为六个欧洲文化，并将其验证为全身硬化症（SSC）中的生活质量的常见措施。

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《Annals of the Rheumatic Diseases: A Journal of Clinical Rheumatology and Connective Tissue Research》 |2018年第7期|共7页
作者
Ndosi Mwidimi; Alcacer-Pitarch Begonya; Allanore Yannick; del Galdo Francesco; Frerix Marc; Garcia-Diaz Silvia; Hesselstrand Roger; Kendall Christine; Matucci-Cerinic Marco; Mueller-Ladner Ulf; Sandqvist Gunnel; Torrente-Segarra Vicenc; Schmeiser Tim; Sierakowska Matylda; Sierakowska Justyna; Sierakowski Stanslaw; Redmond Anthony;
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作者单位

Univ Hosp Bristol NHS Fdn Trust Acad Rheumatol Unit Bristol Avon England;

Univ Leeds Leeds Inst Rheumat &

Musculoskeletal Med Leeds W Yorkshire England;

Paris Descartes Univ Cochin Hosp Rheumatol Dept A Paris France;

Univ Leeds Leeds Inst Rheumat &

Musculoskeletal Med Leeds W Yorkshire England;

Justus Liebig Univ Giessen Dept Rheumatol &

Clin Immunol Bad Nauheim Germany;

Hosp Gen Hosp Moises Broggi Rheumatol Dept St Joan Despi Spain;

Lund Univ Dept Rheumatol Lund Sweden;

Justus Liebig Univ Giessen Dept Rheumatol &

Clin Immunol Bad Nauheim Germany;

Univ Florence Dept Expt Med Florence Italy;

Justus Liebig Univ Giessen Dept Rheumatol &

Clin Immunol Bad Nauheim Germany;

Lund Univ Dept Rheumatol Lund Sweden;

Hosp Gen Hosp Moises Broggi Rheumatol Dept St Joan Despi Spain;

Justus Liebig Univ Giessen Dept Rheumatol &

Clin Immunol Bad Nauheim Germany;

Med Univ Bialystok Dept Integrated Med Care Bialystok Poland;

Med Univ Bialystok Dept Foreign Languages Bialystok Poland;

Med Univ Bialystok Dept Rheumatol &

Internal Dis Bialystok Poland;

Univ Leeds Leeds Inst Rheumat &

Musculoskeletal Med Leeds W Yorkshire England;

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正文语种 eng
中图分类免疫性疾病;
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1. Common measure of quality of life for people with systemic sclerosis across seven European countries: a cross-sectional study [J] . Ndosi Mwidimi, Alcacer-Pitarch Begonya, Allanore Yannick, Annals of the Rheumatic Diseases: A Journal of Clinical Rheumatology and Connective Tissue Research . 2018,第7期

机译：七个欧洲国家系统性硬化症的人生质量的常见措施：横断面研究
2. Analysis of the validation status of Quality of Life and Functional Disability Measures in Pulmonary Arterial Hypertension related to systemic sclerosis: results of a systematic literature Analysis by the Expert Panel on Outcomes Measures in Pulmonary Arterial Hypertension related to systemic sclerosis (EPOSS). [J] . Kowal Bielecka O, Avouac J, Pittrow D, The Journal of rheumatology . 2011,第11期

机译：与系统性硬化症相关的肺动脉高压的生活质量和功能障碍措施的验证状态分析：由与系统性硬化症相关的肺动脉高压结果测量专家小组（EPOSS）进行的系统文献分析。
3. Concepts of functioning and health important to people with systemic sclerosis: a qualitative study in four European countries. [J] . Stamm TA, Mattsson M, Mihai C, Annals of the Rheumatic Diseases: A Journal of Clinical Rheumatology and Connective Tissue Research . 2011,第6期

机译：对系统性硬化症患者重要的功能和健康概念：在四个欧洲国家的定性研究。
4. Identifying Features That Are Predictive of Quality of Life in People With Amyotrophic Lateral Sclerosis [C] . Anna Markella Antoniadi, Miriam Galvin, Mark Heverin, IEEE International Conference on Healthcare Informatics . 2020

机译：识别具有肌营养的侧面硬化症的人们预测生活质量的特征
5. Attitudes to Immigration and Human Values – A Repeated Cross-Sectional Study in Three European Countries [D] . Hoti, Valmira. 2020

机译：移民与人类价值观的态度 - 三个欧洲国家的反复横断面研究
6. Extended report: Common measure of quality of life for people with systemic sclerosis across seven European countries: a cross-sectional study [O] . Mwidimi Ndosi, Begonya Alcacer-Pitarch, Yannick Allanore, -1

机译：扩展报告：七个欧洲国家的系统性硬化症患者生活质量的通用衡量标准：一项横断面研究
7. Concepts of functioning and health important to people with systemic sclerosis: a qualitative study in four European countries [O] . Stamm, Tanja A, Mattsson, Malin, Mihai, Carina, 2011

机译：功能和健康概念对系统性硬化症患者至关重要：在四个欧洲国家进行的定性研究

Common measure of quality of life for people with systemic sclerosis across seven European countries: a cross-sectional study

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