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Extended report: Common measure of quality of life for people with systemic sclerosis across seven European countries: a cross-sectional study

机译：扩展报告：七个欧洲国家的系统性硬化症患者生活质量的通用衡量标准：一项横断面研究

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ObjectivesThe aim of this study was to adapt the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) into six European cultures and validate it as a common measure of quality of life in systemic sclerosis (SSc).

机译：目的本研究的目的是将系统性硬化症生活质量调查表（SScQoL）适应六种欧洲文化，并将其验证为系统性硬化症（SSc）生活质量的常用量度。

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期刊名称 BMJ Open Access
作者
Mwidimi Ndosi; Begonya Alcacer-Pitarch; Yannick Allanore; Francesco del Galdo; Marc Frerix; Sílvia García-Díaz; Roger Hesselstrand; Christine Kendall; Marco Matucci-Cerinic; Ulf Mueller-Ladner; Gunnel Sandqvist; Vicenç Torrente-Segarra; Tim Schmeiser; Matylda Sierakowska; Justyna Sierakowska; Stanslaw Sierakowski; Anthony Redmond;
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作者单位

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年(卷),期 -1(77),7
年度 -1
页码 1032–1038
总页数 7
原文格式 PDF
正文语种
中图分类
关键词
systemic sclerosis quality of life outcomes research patient perspective health services research;

机译：系统性硬化症;生活质量;结果研究;患者观点;卫生服务研究;

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专利

1. Common measure of quality of life for people with systemic sclerosis across seven European countries: a cross-sectional study [J] . Ndosi Mwidimi, Alcacer-Pitarch Begonya, Allanore Yannick, Annals of the Rheumatic Diseases: A Journal of Clinical Rheumatology and Connective Tissue Research . 2018,第7期

机译：七个欧洲国家系统性硬化症的人生质量的常见措施：横断面研究
2. Patient-reported quality of life in multiple sclerosis differs between cultures and countries: a cross-sectional Austrian-German-Polish study. [J] . Pluta Fuerst A, Petrovic K, Berger T, Multiple sclerosis: clinical and laboratory research . 2011,第4期

机译：患者报告的多发性硬化症患者的生活质量在不同文化和国家/地区之间是不同的：一项横断面的奥地利-德国-波兰研究。
3. Concepts of functioning and health important to people with systemic sclerosis: a qualitative study in four European countries. [J] . Stamm TA, Mattsson M, Mihai C, Annals of the Rheumatic Diseases: A Journal of Clinical Rheumatology and Connective Tissue Research . 2011,第6期

机译：对系统性硬化症患者重要的功能和健康概念：在四个欧洲国家的定性研究。
4. Identifying Features That Are Predictive of Quality of Life in People With Amyotrophic Lateral Sclerosis [C] . Anna Markella Antoniadi, Miriam Galvin, Mark Heverin, IEEE International Conference on Healthcare Informatics . 2020

机译：识别具有肌营养的侧面硬化症的人们预测生活质量的特征
5. Differential Item Functioning and Measurement Invariance of Self- and Proxy- Reports: An Evaluation of Objective Quality of Life Measures for People with Intellectual and Developmental Disabilities [D] . Hepperlen, Renee A. 2015

机译：自我和代理人报告的差分项目功能和测量不变性：对具有智力和发展残疾人的人们生活措施的客观质量评估
6. Extended report: Concepts of functioning and health important to people with systemic sclerosis: a qualitative study in four European countries [O] . Tanja A Stamm, Malin Mattsson, Carina Mihai, -1

机译：扩展报告：对系统性硬化症患者重要的功能和健康概念：在四个欧洲国家的定性研究
7. Concepts of functioning and health important to people with systemic sclerosis: a qualitative study in four European countries [O] . Stamm, Tanja A, Mattsson, Malin, Mihai, Carina, 2011

机译：功能和健康概念对系统性硬化症患者至关重要：在四个欧洲国家进行的定性研究

Extended report: Common measure of quality of life for people with systemic sclerosis across seven European countries: a cross-sectional study

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