Secretary's Advisory Committee on Heritable Disorders in Newborns and Children response to the President's Council on Bioethics report: the changing moral focus of newborn screening.

摘要

The following is a commentary from the Secretary's Advisory Committee on Heritable Disorders in Newborns and Children (SACHDNC) concerning the President's Council on Bioethics' (Council) (2001-2009; disbanded in February 2009) report on newborn screening entitled "The Changing Moral Focus of Newborn Screening."The SACHDNC provides advice and recommendations to the Secretary of the federal Department of Health and Human Services (HHS) on matters concerning screening infants and children for inherited disorders. The SACHDNC's charge is to advise and guide the Secretary, HHS, regarding the most appropriate application of childhood and universal newborn screening tests, technologies, policies, guidelines, and programs for effectively reducing morbidity and mortality in newborns and children. In addition, SACHDNC is charged to make systematic evidence-based and peer-reviewed recommendations that include the heritable disorders, which have the potential to affect public health significantly, for which all newborns should be screened, including secondary conditions that may be identified as a result of the laboratory methods used for screening. As of September 2010, SACHDNC has considered nominations for screening newborns for nine conditions.