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Identifiability, genomics and U.K. data protection law.

机译:可识别性,基因组学和英国数据保护法。

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摘要

Analyses of individuals' genomes--their entire DNA sequence--have increased knowledge about the links between genetics and disease. Anticipated advances in 'next generation' DNA-sequencing techniques will see the routine research use of whole genomes, rather than distinct parts, within the next few years. The scientific benefits of genomic research are, however, accompanied by legal and ethical concerns. Despite the assumption that genetic research data can and will be rendered anonymous, participants' identities can sometimes be elucidated, which could cause data protection legislation to apply. We undertake a timely reappraisal of these laws--particularly new penalties--and identifiability in genomic research.
机译:对个体基因组(整个DNA序列)的分析增加了对遗传与疾病之间联系的认识。 “下一代” DNA测序技术的预期进展将在未来几年内看到对整个基因组而不是不同部分的常规研究用途。但是,基因组研究的科学利益伴随着法律和道德问题。尽管假设遗传研究数据可以并且将被匿名化,但有时可以阐明参与者的身份,这可能导致数据保护法规的适用。我们对这些法律-特别是新的刑罚-和基因组研究的可识别性进行了及时的重新评估。

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