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A review of studies looking at quality of life and psychological impact in people with photodermatoses – skin diseases triggered by sunlight

机译:思考 - 阳光引发的皮肤病患者生活质量和心理影响的研究综述 - 阳光引发的皮肤疾病

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Summary Photodermatoses, or photosensitivity conditions, are a group of skin disorders caused by exposure to sunlight, overall affecting a large number of people. They cause a range of distressing symptoms including pain and burn, and can make the skin blister, flake and scar. The conditions themselves and the need for patients to avoid and protect themselves from sunlight may affect quality of life and psychological health. This study, from the U.K., aimed to find out what methods of assessment (tools) have been used to evaluate quality of life and psychological health in photodermatoses, and report what the impact is for patients. The authors reviewed relevant published English‐language studies and summarised their findings. 20 studies were included: 19 assessing quality of life and three assessing psychological function. Six different tools had been used to assess quality of life, and four different tools to assess psychological health. It was shown that 31‐39% of patients with photodermatoses experienced a very large impact on their quality of life. There was a particular impact on issues related to employment, social/leisure activities and clothing choices. Patients had around double the rates of anxiety and depression found in the general population, although few studies focussed on psychological health. The authors also noted that most available tools were not designed to address the unique impact of intermittent sunlight‐induced skin conditions and suggested that development of more specific tools could be beneficial. In conclusion, this study confirmed that patients with photodermatoses experience substantial impact on their quality of life and that more research is needed. This is a summary of the study: Quality of life and psychological impact in the photodermatoses: a systematic review.
机译:发明内容光炎或光敏条件是由暴露在阳光下引起的一组皮肤障碍,整体影响了大量的人。它们导致一系列令人痛苦的症状,包括疼痛和燃烧,可以使皮肤泡沫,剥落和疤痕。这种条件本身和患者从阳光下避免和保护自己的需要可能会影响生活质量和心理健康。从U.K.的这项研究旨在了解了用于评估哪些评估方法(工具),用于评估光密中的生命质量和心理健康状况,并报告患者的影响是什么。作者审查了相关的公布英语研究,并总结了他们的发现。包括20项研究:19评估生活质量和三个评估心理功能。六种不同的工具被用来评估生活质量,以及四种不同的工具来评估心理健康。有显示31-39%的光密患者对其生活质量产生了非常大的影响。对就业,社交/休闲活动和服装选择有关的问题特别影响。患者在一般人群中发现的焦虑和抑郁症率的两倍,尽管少数研究侧重于心理健康。作者还指出,大多数可用的工具并非旨在解决间歇性阳光诱导的皮肤状况的独特影响,并建议更具体的工具的发展可能是有益的。总之,本研究证实,患有光密患者对其生活质量的影响大幅影响,需要更多的研究。这是研究综述:光密中的生活质量和心理影响:系统审查。

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