Exploring knowledge and perceptions of palliative care to inform integration of palliative care education into cystic fibrosis care

摘要

BackgroundIndividuals with cystic fibrosis (CF) face the challenges of managing a chronic, progressive disease. While palliative care is a standard of care in serious illnesses, there are no guidelines for its incorporation into CF care. Patients with CF, caregivers, and CF care providers may lack knowledge about palliative care and perceive barriers to integrated care.