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Shedding new light on the (in)compatibility of chronic disease management with everyday life – social practice theory, mobile technologies and the interwoven time‐spaces of teenage life

机译:对日常生活中慢性疾病管理兼容性的新光 - 社会实践理论,移动技术和青少年生活中的交织时间空间

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Abstract This article uses a socio‐material approach, social practice theory, to provide new insights into the self‐management of chronic illness. It demonstrates how this theory can bridge arguments about the respective roles of social and individual influences, and how it can foreground an oft‐overlooked aspect of the issue – the demands of self‐care technologies and consequences for participation in social life. Drawing on interviews and focus groups with 25 young type‐1 diabetes outpatients in London, UK , the study points to the conflicts that occur when disease management technologies compete for time and space with the social practices of everyday life, and when self‐care tasks threaten to interrupt the flow of social life and make people feel ‘left behind’. The paper concludes that young people are disabled by the contingent position of self‐care activities in daily life, which oblige them to compromise either their physical health or their immersion in the social world. This disabling effect would be mitigated if social practices were reorganised to make them more amenable to the time‐space requirements of disease management. A social practice theory lens can help throw light onto this issue and make a valuable contribution to the study of the self‐management of chronic illness.
机译:摘要本文采用社会材料方法,社会实践理论,为慢性疾病的自我管理提供新的见解。它展示了这一理论如何弥合关于社会和个人影响的各自作用的论据,以及如何将其前景忽视的问题 - 自我保健技术的需求和参与社会生活的后果。在英国伦敦的25名年轻型糖尿病门诊患者的访谈和焦点小组上绘制,研究指出了疾病管理技术与日常生活的社会实践竞争时间和空间时发生的冲突,以及自我保健任务时威胁要打断社会生活的流动,让人们感到“留下”。本文的结论是,日常生活中的自我保健活动的偶然位置禁用了年轻人,这让他们妥协了他们的身体健康或沉浸在社会世界中。如果重组社会实践,将减轻这种禁用效果,以使其更加适合疾病管理的时间空间要求。一个社会实践理论镜头可以帮助光线投入这个问题,并对慢性疾病自我管理的研究作出宝贵的贡献。

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