Patient-Reported Outcomes in Huntington's Disease: Quality of Life in Neurological Disorders (Neuro-QoL) and Huntington's Disease Health-Related Quality of Life (HDQLIFE) Physical Function Measures

Carlozzi Noelle E.; Ready Rebecca E.; Frank Samuel; Cella David; Hahn Elizabeth A.; Goodnight Siera M.; Schilling Stephen G.; Boileau Nicholas R.; Dayalu Praveen

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Patient-Reported Outcomes in Huntington's Disease: Quality of Life in Neurological Disorders (Neuro-QoL) and Huntington's Disease Health-Related Quality of Life (HDQLIFE) Physical Function Measures

机译：亨廷顿患病的患者报告的结果：神经疾病的生活质量（神经QOL）和亨廷顿疾病相关的生活质量（HDQLIFE）物理功能措施

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Background: There is a need for patient-reported outcome measures that capture the impact that motor impairments have on health-related quality of life in individuals with Huntington's disease.

机译：背景：需要患者报告的结果措施，以捕捉到亨廷顿疾病中个人对卫生相关生活质量的影响。

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来源
《Movement disorders》 |2017年第7期|共8页
作者
Carlozzi Noelle E.; Ready Rebecca E.; Frank Samuel; Cella David; Hahn Elizabeth A.; Goodnight Siera M.; Schilling Stephen G.; Boileau Nicholas R.; Dayalu Praveen;
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作者单位

Univ Michigan Dept Phys Med &

Rehabil North Campus Res Complex 2800 Plymouth Rd Ann Arbor MI;

Univ Massachusetts Dept Psychol &

Brain Sci Amherst MA 01003 USA;

Beth Israel Deaconess Med Ctr Boston MA 02215 USA;

Northwestern Univ Inst Hlth Serv Res &

Policy Studies Feinberg Sch Med Chicago IL 60611 USA;

Northwestern Univ Dept Med Social Sci Chicago IL 60611 USA;

Univ Michigan Dept Phys Med &

Rehabil North Campus Res Complex 2800 Plymouth Rd Ann Arbor MI;

Univ Michigan Dept Phys Med &

Rehabil North Campus Res Complex 2800 Plymouth Rd Ann Arbor MI;

Univ Michigan Dept Phys Med &

Rehabil North Campus Res Complex 2800 Plymouth Rd Ann Arbor MI;

Univ Michigan Dept Neurol Ann Arbor MI USA;

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原文格式 PDF
正文语种 eng
中图分类神经病学;
关键词
Neuro-QoL; HDQLIFE; Huntington's disease; physical functioning; chorea; motor symptoms; health-related quality of life; patient-reported outcome (PRO);

机译：Neuro-QoL;HDQLife;亨廷顿的疾病;物理功能;舞蹈;运动症状;与卫生相关的生活质量;患者报告的结果（专业人士）;

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专利

1. Patient-Reported Outcomes in Huntington's Disease: Quality of Life in Neurological Disorders (Neuro-QoL) and Huntington's Disease Health-Related Quality of Life (HDQLIFE) Physical Function Measures [J] . Carlozzi Noelle E., Ready Rebecca E., Frank Samuel, Movement disorders . 2017,第7期

机译：亨廷顿患病的患者报告的结果：神经疾病的生活质量（神经QOL）和亨廷顿疾病相关的生活质量（HDQLIFE）物理功能措施
2. HDQLIFE and Neuro-QoL Physical Function Measures: Responsiveness in Persons With Huntington's Disease [J] . Trends in Ecology & Evolution . 2020,第2期

机译：HDQLIFE和神经QOL物理功能措施：亨廷顿疾病人员的响应性
3. Health-related quality of life in Huntington's disease patients: a comparison of proxy assessment and patient self-rating using the disease-specific Huntington's disease health-related quality of life questionnaire (HDQoL). [J] . Mevhibe B Hocaoglu, E A Gaffan, Aileen K Ho Journal of neurology . 2012,第9期

机译：亨廷顿氏病患者与健康有关的生活质量：使用特定疾病的亨廷顿氏病健康与生活质量调查表（HDQoL）对代理评估和患者自我评估的比较。
4. Copy Number Variation, Eicosapentaenpic Acid and Neurological Disorders: With Particular Reference to Huntington's Disease and Associated CAG Repeats, and to Myalgic Encepliaiomyelitis and Viral Infec [C] . Basant K. Puri, Mehar S. Manku Congress of the International Society of Nutrigenetic/Nutrigenomics . 2010

机译：拷贝数变异，eicosapentaenpic酸和神经疾病：特别参考亨廷顿的疾病和相关的CAG重复，以及肌algicenceplia肌炎和病毒infec
5. The Effectiveness of a Heart Failure Disease Management Programme on Clinical Outcomes, Health-related Quality of Life, and Psychological Status of Patients with Heart Failure in China. [D] . Yu, Mingming. 2011

机译：心力衰竭疾病管理计划对中国心力衰竭患者的临床结果，健康相关生活质量和心理状况的有效性。
6. Patient-Reported Outcomes in Huntington Disease: Neuro-QOL and HDQLIFE Physical Function Measures [O] . N.E. Carlozzi, R.E. Ready, S. Frank, -1

机译：亨廷顿病患者报告的结果：Neuro-QOL和HDQLIFE身体机能指标
7. Patient-reported outcome measures in Huntington disease: Quality of life in neurological disorders (Neuro-QoL) social functioning measures. [O] . Noelle E. Carlozzi, Elizabeth A. Hahn, Siera M. Goodnight, 2018

机译：患有亨廷顿病的患者报告的结果措施：神经障碍的生活质量（神经QOL）社会功能措施。

Patient-Reported Outcomes in Huntington's Disease: Quality of Life in Neurological Disorders (Neuro-QoL) and Huntington's Disease Health-Related Quality of Life (HDQLIFE) Physical Function Measures

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