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首页> 外文期刊>European journal of human genetics: EJHG >Genomic cloud computing: legal and ethical points to consider
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Genomic cloud computing: legal and ethical points to consider

机译:基因组云计算:考虑法律和道德观点

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摘要

The biggest challenge in twenty-first century data-intensive genomic science, is developing vast computer infrastructure and advanced software tools to perform comprehensive analyses of genomic data sets for biomedical research and clinical practice. Researchers are increasingly turning to cloud computing both as a solution to integrate data from genomics, systems biology and biomedical data mining and as an approach to analyze data to solve biomedical problems. Although cloud computing provides several benefits such as lower costs and greater efficiency, it also raises legal and ethical issues. In this article, we discuss three key 'points to consider' (data control; data security, confidentiality and transfer; and accountability) based on a preliminary review of several publicly available cloud service providers' Terms of Service. These 'points to consider' should be borne in mind by genomic research organizations when negotiating legal arrangements to store genomic data on a large commercial cloud service provider's servers. Diligent genomic cloud computing means leveraging security standards and evaluation processes as a means to protect data and entails many of the same good practices that researchers should always consider in securing their local infrastructure.
机译:二十一世纪的最大挑战是数据密集型基因组科学,正在开发庞大的计算机基础设施和先进的软件工具,以便对生物医学研究和临床实践进行全面分析基因组数据集。研究人员越来越多地转向云计算,作为将数据集成到基因组学,系统生物学和生物医学数据挖掘的解决方案以及分析数据以解决生物医学问题的方法。虽然云计算提供了几个好处,如较低的成本和更高效率,但它也提出了合法和道德问题。在本文中,我们讨论了三个关键“要考虑”(数据控制;数据安全,机密性和转移;和问责制),基于对几种公开可用的云服务提供商的服务条款初步审查。在谈判法律安排时,应由基因组研究组织在储存大型商业云服务提供商的服务器上储存基因组数据时,应考虑到这些“要考虑的要点”。勤勉基因组云计算意味着利用安全标准和评估过程作为保护数据的手段,并需要研究人员应该始终考虑确保其当地基础设施的许多相同的良好做法。

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