Development of a consensus core dataset in juvenile dermatomyositis for clinical use to inform research

McCann Liza J.; Pilkington Clarissa A.; Huber Adam M.; Ravelli Angelo; Appelbe Duncan; Kirkham Jamie J.; Williamson Paula R.; Aggarwal Amita; Christopher-Stine Lisa; Constantin Tamas; Feldman Brian M.; Lundberg Ingrid; Maillard Sue; Mathiesen Pernille; Murphy Ruth; Pachman Lauren M.; Reed Ann M.; Rider Lisa G.; van Royen-Kerkof Annet; Russo Ricardo; Spinty Stefan; Wedderburn Lucy R.; Beresford Michael W.

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Development of a consensus core dataset in juvenile dermatomyositis for clinical use to inform research

机译：开发少年皮质肌炎的共识核心数据集进行临床用途，以告知研究

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Objectives This study aimed to develop consensus on an internationally agreed dataset for juvenile dermatomyositis (JDM), designed for clinical use, to enhance collaborative research and allow integration of data between centres.

机译：本研究的目标旨在在专为临床用途的少年皮质肌炎（JDM）的国际商定数据集上开发共识，以提高协作研究并允许在中心之间整合数据。

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来源
《Annals of the Rheumatic Diseases: A Journal of Clinical Rheumatology and Connective Tissue Research》 |2018年第2期|共10页
作者
McCann Liza J.; Pilkington Clarissa A.; Huber Adam M.; Ravelli Angelo; Appelbe Duncan; Kirkham Jamie J.; Williamson Paula R.; Aggarwal Amita; Christopher-Stine Lisa; Constantin Tamas; Feldman Brian M.; Lundberg Ingrid; Maillard Sue; Mathiesen Pernille; Murphy Ruth; Pachman Lauren M.; Reed Ann M.; Rider Lisa G.; van Royen-Kerkof Annet; Russo Ricardo; Spinty Stefan; Wedderburn Lucy R.; Beresford Michael W.;
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作者单位

Alder Hey Childrens NHS Fdn Trust Dept Paediat Rheumatol Liverpool L14 5AB Merseyside England;

Great Ormond St Hosp Children NHS Fdn Trust Dept Paediat Rheumatol London England;

IWK Hlth Ctr Div Pediat Rheumatol Halifax NS Canada;

Univ Genoa Div Rheumatol Genoa Italy;

Univ Liverpool Dept Biostat MRC North West Hub Trials Methodol Res Liverpool Merseyside England;

Univ Liverpool Dept Biostat MRC North West Hub Trials Methodol Res Liverpool Merseyside England;

Univ Liverpool Dept Biostat MRC North West Hub Trials Methodol Res Liverpool Merseyside England;

Sanjay Gandhi Postgrad Inst Med Sci Dept Clin Immunol Lucknow Uttar Pradesh India;

Johns Hopkins Univ Johns Hopkins Myositis Ctr Baltimore MD USA;

Semmelweis Univ Dept Paediat 2 Budapest Hungary;

Hosp Sick Children Dept Pediat Toronto ON Canada;

Karolinska Inst Karolinska Univ Hosp Rheumatol Unit Dept Med Stockholm Sweden;

Great Ormond St Hosp Children NHS Fdn Trust Dept Paediat Rheumatol London England;

Naestved Hosp Dept Paediat &

Adolescent Med Naestved Region Zeeland Denmark;

Royal Hallamshire Hosp Dept Dermatol Sheffield S Yorkshire England;

Northwestern Univ Dept Pediat Feinberg Sch Med Chicago IL 60611 USA;

Duke Univ Dept Paediat Durham NC USA;

NIEHS Environm Autoimmun Grp Clin Res Branch Bethesda MD USA;

Wilhelmina Childrens Hosp Univ Med Ctr Dept Paediat Immunol &

Rheumatol Utrecht Netherlands;

Paediat Hosp Dr Juan P Garrahan Dept Paediat Immunol &

Rheumatol Buenos Aires DF Argentina;

Alder Hey Childrens NHS Fdn Trust Dept Paediat Neurol Liverpool Merseyside England;

Great Ormond St Hosp Children NHS Fdn Trust Dept Paediat Rheumatol London England;

Alder Hey Childrens NHS Fdn Trust Dept Paediat Rheumatol Liverpool L14 5AB Merseyside England;

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原文格式 PDF
正文语种 eng
中图分类免疫性疾病;
关键词
dermatomyositis; patient perspective; outcomes research; autoimmune diseases; multidisciplinary team-care;

机译：Dermatomyositis;病人的观点;结果研究;自身免疫性疾病;多学科团队保养;

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专利

1. Development of a consensus core dataset in juvenile dermatomyositis for clinical use to inform research [J] . McCann Liza J., Pilkington Clarissa A., Huber Adam M., Annals of the Rheumatic Diseases: A Journal of Clinical Rheumatology and Connective Tissue Research . 2018,第2期

机译：开发少年皮质肌炎的共识核心数据集进行临床用途，以告知研究
2. Development of an internationally agreed minimal dataset for juvenile dermatomyositis (JDM) for clinical and research use [J] . Liza J. McCann, Jamie J. Kirkham, Lucy R. Wedderburn, Trials . 2015,第1期

机译：开发国际公认的青少年皮肌炎（JDM）最小数据集，用于临床和研究
3. Childhood Arthritis and Rheumatology Research Alliance Consensus Clinical Treatment Plans for Juvenile Dermatomyositis with Persistent Skin Rash [J] . Huber Adam M., Kim Susan, Reed Ann M., The Journal of rheumatology . 2017,第1期

机译：儿童关节炎和风湿病学研究联盟共识临床治疗计划对持续的皮疹的幼年皮肤肌炎
4. Biomarker Status of Proteins in Circulating Immune Complexes Isolated from Dermatomyositis, Systemic Lupus Erythematosus and Juvenile Idiopathic Arthritis Plasma [C] . Leticia Cano American Society for Mass Spectrometry Conference on Mass Spectrometry and Allied Topics . 2010

机译：循环免疫复合物中蛋白质的生物标志物状态从皮肤病，全身性狼疮红斑和幼年特发性关节炎等离子体中分离出来的免疫复合物
5. Informing, evaluating and automating the record linkage process for reliably combining disparate datasets. [D] . DuVall, Scott Leroy. 2010

机译：通知，评估和自动化记录链接过程，以可靠地组合不同的数据集。
6. Extended report: Development of a consensus core dataset in juvenile dermatomyositis for clinical use to inform research [O] . Liza J McCann, Clarissa A Pilkington, Adam M Huber, -1

机译：扩展报告：开发青少年皮肌炎的共识核心数据集以供临床研究参考
7. Development of a consensus core dataset in juvenile dermatomyositis for clinical use to inform research [O] . McCann, LJ, Pilkington, CA, Huber, AM, 2017

机译：少年皮肌炎的共识核心数据集的开发，为临床研究提供参考

Development of a consensus core dataset in juvenile dermatomyositis for clinical use to inform research

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