Fostering responsible data sharing through standards

摘要

Unfortunately, the diverse ways in which data are collected and reported in clinical studies make it difficult or impossible to query across data sets, pool and share data, or integrate data for analyses of multiple trials to gain new scientific insights. Yet these problems can be resolved through the use of standard data formats, and the best outcomes would be achieved if data standards were adhered to from the start — within the electronic health record (EHR).