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UnderstAID, an ICT Platform to Help Informal Caregivers of People with Dementia: A Pilot Randomized Controlled Study

机译:UnderstAID,一个帮助痴呆症患者非正式护理人员的信息通讯技术平台:一项随机对照试验研究

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摘要

Information and communications technology (ICT) could support ambient assisted living (AAL) based interventions to provide support to informal caregivers of people with dementia, especially when they need to cope with their feelings of overburden or isolation. An e-learning platform (understAID application) was tested by informal caregivers from Denmark, Poland, and Spain to explore the technical and the pedagogical specifications, as well as evaluating the impact of its use on the psychological status of the participants. 61 informal caregivers completed the study taking part in the experimental (n = 30) or control (n = 31) groups. 33.3% of the caregivers were satisfied with the application and around 50% of the participants assessed it as technically and pedagogically acceptable. After using understAID the caregivers in the experimental group significantly decreased their depressive symptomatology according to the Center for Epidemiologic Studies Depression scale, but a possible benefit on their feelings of competence and satisfaction with the caring experience was also observed. The low scores obtained for satisfaction were highlighting issues that need to be modified to meet the informal caregivers' needs in national, social, and cultural context. Some possible biases are also considered and discussed to be taken into account in future improvements of understAID application.
机译:信息和通信技术(ICT)可以支持基于环境辅助生活(AAL)的干预措施,以向痴呆症患者的非正式照护者提供支持,尤其是当他们需要应对负担过重或孤立的感觉时。来自丹麦,波兰和西班牙的非正式护理人员对一个电子学习平台(understAID应用程序)进行了测试,以探索技术和教学规范,并评估其使用对参与者心理状态的影响。 61名非正式护理人员完成了研究,参加了实验组(n = 30)或对照组(n = 31)。 33.3%的看护者对该应用程序感到满意,大约50%的参与者认为该应用程序在技术和教学上均可接受。根据流行病学研究中心的抑郁量表,使用understAID后,实验组的护理人员显着降低了他们的抑郁症状,但同时也观察到了他们的能力和对护理经历的满意感。满意度低分突出显示了一些问题,需要对其进行修改以满足在国家,社会和文化背景下非正式护理人员的需求。在对understAID应用程序的将来改进中,还考虑并讨论了一些可能的偏差。

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