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How to Collect Consent for an Anonymous Medical Database

机译:如何收集同意匿名医疗数据库

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The goal of some medical databases is not to support the actual treatment of individual patients, but to provide the platform for medical research. Health data collected in such databases have to be anynomized - they should be analyzed only statistically and should not permit to retrieve the patient's identity. Medical data collected for research should be anonymized to protect the patients' privacy. In many countries it is mandatory. In many cases, not only one person treats a patient for a given illness. The documentation of a case requires the collaboration of different physicians that share information. This sharing of information requires the patient to authorise the access to the data stored by one physician by another one. We need therefore to implement a system for collecting the consent of an anonymous person. We present a novel solution to allow the practitioner to collect the consent of the patient in order to access the data recorded for that person. This solution is based on existing infrastructure, such as X509 certificates (present in e-ID or e-Health cards). Patients do not require to acquire any new hardware or to remember any new secret. We produce the fingerprint of the private key of the patient that can be used to re-identify the patient without having to know the identity of the patient (for instance the certificate) or even the patient's public key.
机译:一些医疗数据库的目标不是支持个体患者的实际治疗,而是提供医学研究平台。在此类数据库中收集的健康数据必须发生 - 应仅在统计上进行分析,不应允许检索患者的身份。收集的医疗数据应匿名保护患者的隐私。在许多国家,它是强制性的。在许多情况下,不仅有一个人对某些人对待患者。案件的文件需要共享信息的不同医生的合作。这种信息共享要求患者授权访问另一个医生存储的数据。因此,我们需要实施一个用于收集匿名人员同意的系统。我们提出了一种新的解决方案,以允许从业者收取患者的同意,以便访问为该人记录的数据。此解决方案基于现有的基础架构,例如X509证书(以电子ID或电子保健卡存在)。患者不需要获取任何新硬件或记住任何新秘密。我们生产可用于重新识别患者的患者的私钥的指纹,而无需了解患者的身份(例如证书)甚至患者的公钥。

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