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Kid-Ney's Journey: A game to support treatment selection for people with chronic kidney failure

机译:Kid-Ney的旅程:支持慢性肾衰竭患者选择治疗的游戏

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The number of people suffering from chronic kidney failure is rising, due to the growing population of elderly, longer life-expectancy, and the increasing number of people with other lifestyle related diseases that affect the kidneys. People with severe chronic kidney failure are dependent on some form of kidney replacement treatment to survive. They are often eligible for several treatment methods and here the patient should be involved in the decision making, especially when the medical outcome is expected to be similar. This is important, as people are the experts on their life, values and believes and the different treatment methods each have unlike effects on daily life. However, knowledge is a barrier for these patients to actively take part in such discussions with their medical professional. This paper discusses a game-concept that is developed to give people more insight in the effects of a treatment on daily life, as well as helping them to evaluate the different treatment methods. The goal of this paper is to contribute to the development of additional patient information sources that focus on values and beliefs, and the effects of treatment on daily life, in order to empower patients in discussions with their medical professionals.
机译:由于老年人人口越来越多,寿命更长,越来越多的人群,越来越多的人,患有影响肾脏的其他生活方式相关疾病的人数,患慢性肾功能衰竭的人数正在上升。严重慢性肾功能衰竭的人依赖于某种形式的肾脏替代治疗以存活。它们通常有资格获得几种治疗方法,此处患者应参与决策,特别是当预计医疗结果相似时。这很重要,因为人们是他们生命,价值观和相信的专家,以及各种治疗方法都与日常生活不同。然而,知识是这些患者积极参与与其医学专业人士这样的讨论的障碍。本文讨论了一个游戏概念,该概念被制定为使人们更加了解治疗对日常生活的影响,以及帮助他们评估不同的治疗方法。本文的目标是有助于开发专注于价值观和信仰的额外患者信息来源,以及治疗日常生活的影响,以赋予患者与其医疗专业人员进行讨论。

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