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Quality of Life and Concerns in Parent Caregivers of Adult Children Diagnosed with Intellectual Disability: A Qualitative Study

机译:患有智力残疾的成人儿童父母照顾者的生活质量和担忧:一个定性研究

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摘要

Background: Previous studies have confirmed that parenting a child diagnosed with an intellectual disability (ID) can negatively affect the parents’ quality of life in several dimensions. However, fewer have assessed its impact years after the initial diagnosis. The objective of this work was to carry out an in-depth analysis of the current quality of life and concerns of both mothers and fathers of adults diagnosed with ID, having as a reference the moment of the diagnosis. Methods: 16 parents of adult children with ID were evaluated using a semi-structured interview format. A thematic qualitative analysis was carried out by employing ATLAS.ti software. Results: The results suggested that both the emotional and physical well-being of parents, as well as their interpersonal relationships, had declined. In addition, the multiple life changes that had occurred over the time considered in this study, as well as day-to-day worries, had prevented improvements in their quality of life. Conclusions: Several dimensions of the parents’ quality of life were affected years after a child is diagnosed with ID. These included poor physical and psychological health, economic difficulties, lack of social and family support, and lack of time for self-care.
机译:背景:以前的研究已经证实,养育诊断为智力残疾(ID),一个孩子可以在负几个维度父母的生活质量的影响。然而,较少有初步诊断后评估其影响年。这项工作的目的是进行生活,母亲和确诊为ID成人的父亲担忧的电流质量的深入分析,具有诊断时作为参考。方法:16对父母的成年子女与ID的使用半结构访谈形式进行了评价。一次专题定性分析,通过采用ATLAS.ti的软件进行。结果:结果表明,无论是情绪和身体安康的父母,以及他们的人际关系,已经下降。此外,在本研究中考虑的时间已经发生的多个生活的变化,以及一天到一天的烦恼,妨碍了改善他们的生活质量。结论:一个孩子被确诊为ID后,父母的生活质量的不同方面受到影响年。这些措施包括穷人的身体和心理健康,经济困难,缺乏社会和家庭的支持,缺乏时间进行自我保健。

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