Convegno. Medicina narrativa e malattie rare. Istituto Superiore di Sanita. Roma, 26 giugno 2009. (Meeting. Narrative Medicine and Rare Diseases. Istituto Superiore di Sanita. Rome, June 26, 2009. Proceedings)

摘要

Narrative medicine and rare diseases has been the first congress on these topics in Italy, organized by the National Centre for Rare Diseases at the Istituto Superiore di Sanita (Italian National Institute of Health); the congress aimed to promote narrative medicine applied to rare diseases among health operators and patients. Rare diseases, defined by their low prevalence, are often severe, chronic and disabling conditions. They are difficult to diagnose and with few specific therapeutic options. Narrative medicine aims to build a bridge between the clinical knowledge of clinicians (and more in general among social and health professionals) and the patients subjective experience. The present report illustrate the authors contributions to the congress through lectures, audiovisual contributions and a poster session mainly dedicated to practical experiences.