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Autism beyond pediatrics: Why bioethicists ought to rethink consent in light of chronicity and genetic identity

机译:儿科以外的自闭症:为什么生物伦理学家应该根据慢性病和遗传特征重新考虑同意

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摘要

Autism is a chronic neurodevelopmental disorder that presents unique challenges to bioethicists. In particular, bioethicists ought to reconsider pediatric consent in light of disparity between beliefs that are held about the disorder by parents and adults with autism. The neurodiverse community ought to be given some consideration in this debate, and, as such, there may be a role for autistic narratives in clarifying this problem.
机译:自闭症是一种慢性神经发育障碍,对生物伦理​​学家提出了独特的挑战。特别是,生物伦理学家应该根据父母和患有自闭症的成年人对这种疾病持有的信念之间的差异,重新考虑儿童的同意。在这次辩论中,应该对神经多样性社区进行一些考虑,因此,自闭症叙事可能会在澄清这个问题上发挥作用。

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