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Journal of Patient-Reported Outcomes

中文名称：患者报告结果杂志

ISSN：2509-8020
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发文量：249

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1.Impact of short stature on health-related quality of life in long-term survivors of acute lymphoblastic leukemia in childhood and adolescence

机译：身材矮小对儿童和青少年急性淋巴细胞白血病长期存活者健康相关生活质量的影响
- 作者：Laura Collins;Uma Athale;Amy Cranston;Ronald Barr
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Short statureHealth-related quality of lifeSurvivorsAcute lymphoblastic leukemia;
2.Exploring the implementation of patient-reported outcome measures in cancer care: need for more real-world evidence results in the peer reviewed literature

机译：探索患者报告的结局指标在癌症治疗中的实施：同行评审文献中需要更多真实证据
- 作者：Milena Anatchkova;Sarah M. Donelson;Anne M. Skalicky;Colleen A. McHorney;Dayo Jagun;Jennifer Whiteley
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Patient-reported outcomesClinical practiceQuality of carePRO implementationPatient-centered careCancerOncology;
3.Development and psychometric evaluation of a Dutch-translated shorter Breast Cancer Treatment Outcome Scale (Dutch BCTOS-13)

机译：荷兰翻译的较短的乳腺癌治疗结果量表（荷兰语BCTOS-13）的发展和心理测评
- 作者：Gerson M. Struik;Frank W. de Jongh;Erwin Birnie;Jean-Philippe Pignol;Taco M. Klem
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- BCTOSBreast cancerBreast conserving treatmentCosmesisClinical validityDutch;
4.Measurement properties of the German version of the IKDC subjective knee form (IKDC-SKF)

机译：德文版IKDC主观膝盖形式（IKDC-SKF）的测量属性
- 作者：Danica Kümmel;Stefan Preiss;Laurent P. Harder;Michael Leunig;Franco M. Impellizzeri
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- IKDCPROMValidityReliabilityResponsiveness;
5.Literature review to characterize the empirical basis for response scale selection in pediatric populations

机译：文献综述以表征儿童人群反应量表选择的经验基础
- 作者：April N. Naegeli;Jennifer Hanlon;Katharine S. Gries;Shima Safikhani;Anna Ryden;Mira Patel;Mabel Crescioni;Margaret Vernon
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- PediatricPatient-reported outcomeResponse optionRating scaleResponse scalesChildren;
6.Development of the Impact of Juvenile Metachromatic Leukodystrophy on Physical Activities scale

机译：青少年变色性脑白质营养不良对体育活动量表的影响
- 作者：T. Michelle Brown;Susan Martin;Sheri E. Fehnel;Linda S. Deal
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- LeukodystrophyMLDMetachromatic leukodystrophyAutosomal recessive enzyme deficiencyGenetic diseasesPatient-reported outcomeArylsulfatase a deficiency;
7.How do depressed patients evaluate their quality of life? A qualitative study

机译：抑郁症患者如何评估生活质量？定性研究
- 作者：Jacques J. Zimmermann;Maria Lucia Tiellet Nunes;Marcelo P. Fleck
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Quality of lifeDepressionQualitative studyWhoqol-bref;
8.Care-related Quality of Life of informal caregivers of the elderly after a hip fracture

机译：髋部骨折后老年人非正式护理人员的护理相关生活质量
- 作者：Cornelis L. P. van de Ree;Kari Ploegsma;Tim A. Kanters;Jan A. Roukema;Mariska A. C. De Jongh;Taco Gosens
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Hip fractureElderlyInformal careCarerQoL instrument;
9.Patient reported outcomes – experiences with implementation in a University Health Care setting

机译：患者报告的结果–在大学医疗机构中实施的经验
- 作者：Joshua Biber;Dominik Ose;Jenny Reese;Anna Gardiner;Julio Facelli;Joshua Spuhl;Darrel Brodke;Vivian S. Lee;Rachel Hess;Howard Weeks
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Patient reported outcome measuresInformation systemsPatient-centered careHospital administration;
10.Important differences and meaningful changes for the Functional Assessment of Cancer Therapy-Cognitive Function (FACT-Cog)

机译：癌症治疗-认知功能（FACT-Cog）功能评估的重要差异和有意义的变化
- 作者：M L Bell;H M Dhillon;V J Bray;J L Vardy
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- OncologyCancerChemotherapyCognitive impairmentQuality of lifeMinimal clinically important differenceFACT-CogResponderClinically important differenceCumulative distribution function;
11.Application of a Bayesian graded response model to characterize areas of disagreement between clinician and patient grading of symptomatic adverse events

机译：贝叶斯分级反应模型在表征临床和患者症状不良事件分级之间的差异方面的应用
- 作者：Thomas M. Atkinson;Bryce B. Reeve;Amylou C. Dueck;Antonia V. Bennett;Tito R. Mendoza;Lauren J. Rogak;Ethan Basch;Yuelin Li
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Patient-reported outcomesClinician-patient agreementItem response theoryNeoplasms;
12.Understanding and measuring symptoms and health status in asthma COPD overlap: content validity of the EXACT and SGRQ

机译：了解和衡量哮喘COPD的症状和健康状况重叠：EXACT和SGRQ的内容有效性
- 作者：Linda Nelsen;Adam Gater;Charlotte Panter;Chloe Tolley;Laurie Lee;Steven Pascoe
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Asthma-COPD overlapChronic obstructive pulmonary diseaseImpactsPatient-reported outcomeSymptomsHealth-related quality of life;
13.A utility valuation study assessing the impact of postprandial glucose control on quality of life of individuals with type 1 or type 2 diabetes

机译：一项效用评估研究，评估餐后血糖控制对1型或2型糖尿病患者生活质量的影响
- 作者：J. Jendle;A. Sandberg;S. Buchs;P. Swinburn;M. Hadi;L. ?. Levin
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- DiabetesPost-prandial hyperglycaemiaUtility;
14.The association between pregnancy, pelvic girdle pain and health-related quality of life – a comparison of two instruments

机译：怀孕，骨盆带疼痛与健康相关的生活质量之间的关联–两种仪器的比较
- 作者：Pernille Stendal Robinson;Arun Prasad Balasundaram;Nina K?pke V?llestad;Hilde Stendal Robinson
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
15.Rasch analysis in the development of the NutriQoL? questionnaire, a specific health-related quality of life instrument for home enteral nutrition

机译：Rasch分析在NutriQoL开发中的作用？问卷，一种与健康相关的特定生活质量的家庭肠内营养仪
- 作者：Antonio Apezetxea;Lourdes Carrillo;Felipe Casanueva;Cristina de la Cuerda;Federico Cuesta;Jose Antonio Irles;Maria Nuria Virgili;Miquel Layola;Luis Lizán
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Home enteral nutritionHealth-related quality of lifeRasch analysis;
16.Literature review to assemble the evidence for response scales used in patient-reported outcome measures

机译：文献综述以收集用于患者报告的结局指标的反应量表的证据
- 作者：Katharine Gries;Pamela Berry;Magdalena Harrington;Mabel Crescioni;Mira Patel;Katja Rudell;Shima Safikhani;Sheryl Pease;Margaret Vernon
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Patient-reported outcomeResponse optionResponse scalesLiterature review;
17.Bifactor model of the CASP-12’s general factor for measuring quality of life in older patients

机译：CASP-12用于测量老年患者生活质量的一般因素的双因素模型
- 作者：Matthew J. Kerry
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
18.Depressive symptom prevalence after intracerebral hemorrhage: a multi-center study

机译：脑出血后抑郁症状的患病率：一项多中心研究
- 作者：Brandon A. Francis;Jennifer Beaumont;Matthew B. Maas;Eric M. Liotta;David Cella;Shyam Prabhakaran;Jane Holl;Abel Kho;Andrew M. Naidech
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Intracerebral hemorrhageQuality of lifeDepressionNeurocritical careAntidepressant medication;
19.Emerging good practices for Translatability Assessment (TA) of Patient-Reported?Outcome (PRO) measures

机译：针对患者报告的结果（PRO）措施的可翻译性评估（TA）的新兴良好实践
- 作者：Catherine Acquadro;Donald L. Patrick;Sonya Eremenco;Mona L. Martin;Dagmara Kuli?;Helena Correia;Katrin Conway
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Clinical outcomes assessmentsPatient-reported outcomesTranslationCultural adaptationLinguistic validationInstrument developmentTranslatability assessment;
20.Measurement of alienation among adolescents: construct validity of three scales on powerlessness, meaninglessness and social isolation

机译：测量青少年的疏远感：构建关于无力，无意义和社会孤立的三个量表的有效性
- 作者：Signe Boe Rayce;Svend Kreiner;Mogens Trab Damsgaard;Tine Nielsen;Bj?rn Evald Holstein
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- AdolescentsAlienationConstruct validityItem response theoryMeaninglessnessPowerlessnessRasch modelsSocial isolationScale validation;
21.Feasibility of collecting retrospective patient reported outcome measures (PROMs) in emergency hospital admissions

机译：在急诊入院时收集患者回顾性报告结果指标（PROM）的可行性
- 作者：Esther Kwong;Nick Black
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Patient reported outcome measuresHealth statusHealth-related quality of lifeRetrospectiveFeasibilityemergency admissionsSTEMIemergency laparotomy;
22.Patients’ experience of recurrent/metastatic head and neck squamous cell carcinoma and their perspective on the EORTC QLQ-C30 and QLQ-H&N35 questionnaires: a qualitative study

机译：患者复发/转移性头颈部鳞状细胞癌的经验及其对EORTC QLQ-C30和QLQ-H＆N35问卷的看法：定性研究
- 作者：Arnold Degboe;Sarah L. Knight;Katarina Halling;Andrew Trigg;Tamara Al-Zubeidi;Natalie Aldhouse;Helen Kitchen;Lori Wirth;Simon N. Rogers
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Qualitative interviewsHead and neck cancerHNSCCOncologyPatient reported outcomeEORTC QLQ-C30EORTC QLQ-HN35Disease conceptual model;
23.The feasibility of implementing the ICHOM Standard Set for Hip and Knee Osteoarthritis: a mixed-methods evaluation in public and private hospital settings

机译：实施《 ICHOM髋关节和膝盖骨关节炎标准集》的可行性：在公立和私立医院中进行混合方法评估
- 作者：Ilana N. Ackerman;Bernarda Cavka;Jacob Lippa;Andrew Bucknill
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- OsteoarthritisOutcomes assessmentPatient reported outcomesTotal knee replacementTotal hip replacement;
24.Development and psychometric validation of the Nausea/Vomiting Symptom Assessment patient-reported outcome (PRO) instrument for adults with secondary hyperparathyroidism

机译：成人继发性甲状旁腺功能亢进症的恶心/呕吐症状评估患者报告结局（PRO）仪器的开发和心理计量学验证
- 作者：Colleen A. McHorney;Mark E. Bensink;Laurie B. Burke;Vasily Belozeroff;Chad Gwaltney
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- NVSA?NauseaVomitingPatient-reported outcomesQualitative researchQualitative concept elicitationQualitative cognitive interviewsPsychometricsChronic kidney diseaseSecondary hyperparathyroidism;
25.PRO-based follow-up as a means of self-management support – an interpretive description of the patient perspective

机译：基于PRO的随访作为自我管理支持的一种手段–对患者观点的解释性描述
- 作者：Caroline Trillingsgaard Mejdahl;Liv Marit Valen Schougaard;Niels Henrik Hjollund;Erik Riiskj?r;Sally Thorne;Kirsten Lomborg
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
26.Patient-Reported Outcome (PRO) Consortium translation process: consensus development of updated best practices

机译：患者报告的结果（PRO）财团翻译过程：一致开发最新最佳实践
- 作者：Sonya Eremenco;Sheryl Pease;Sarah Mann;Pamela Berry
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Patient-reported outcomeTranslationCultural adaptationLinguistic validationUniversal translationCountry-specific translation;
27.Response scale selection in adult pain measures: results from a literature review

机译：成人疼痛测量中的反应量表选择：文献综述的结果
- 作者：Shima Safikhani;Katharine S. Gries;Jeremiah J. Trudeau;David Reasner;Katja Rüdell;Stephen Joel Coons;Elizabeth Nicole Bush;Jennifer Hanlon;Lucy Abraham;Margaret Vernon
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- PainOutcome measurementResponse optionsRating scalesResponse scales;
28.Integrating the patient voice with clinician reports to identify a hepatocellular carcinoma-specific subset of treatment-related symptomatic adverse events

机译：将患者的声音与临床医生的报告相结合，以确定与治疗相关的有症状不良事件的肝细胞癌特异性子集
- 作者：Rebecca M. Speck;William R. Lenderking;James W. Shaw
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Symptomatic adverse eventsPatient-reported outcomesHepatocellular carcinomaPRO-CTCAE;
29.The facilitators and barriers to implementing patient reported outcome measures in organisations delivering health related services: a systematic review of reviews

机译：在提供健康相关服务的组织中实施患者报告的结局指标的促进因素和障碍：综述的系统评价
- 作者：Alexis Foster;Liz Croot;John Brazier;Janet Harris;Alicia O’Cathain
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Patient-reported outcomesQuality of lifeOutcome assessmentImplementing;
30.Psychometric evaluation of a caregiver diary for the assessment of symptoms of respiratory syncytial virus

机译：心理照护者对呼吸道合胞病毒症状评估的评估日记
- 作者：Valerie Williams;Carla DeMuro;Sandy Lewis;Nicole Williams;Todd Wolynn;Paul Wisman;Stan L. Block;Shelly Senders;Seth Toback;Jason W. Chien
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- Respiratory syncytial virusPsychometric evaluationClinical outcomes assessmentObserver-reported outcomeCaregiver diary;
31.Content validity and ePRO usability of the BPI-sf and “worst pain” item with pleural and peritoneal mesothelioma

机译：BPI-sf和“最痛”项目伴有胸膜和腹膜间皮瘤的内容有效性和ePRO可用性
- 作者：Heather L. Gelhorn;Sonya Eremenco;Anne M. Skalicky;Zaneta Balantac;Tricia Cimms;Katarina Halling;Chris Sexton
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
- QualitativeMesotheliomaSymptomsPainHRQLPatient reported outcomeBrief pain inventory;
32.Towards the use of mixed methods inquiry as best practice in health outcomes research

机译：致力于将混合方法探究用作健康结果研究的最佳实践
- 作者：Antoine Regnault;Tom Willgoss;Skye Barbic
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2018年第1期
33.Implementation of a Patient Reported Experience Measure in a Dutch disability care organisation: a qualitative study

机译：患者的实施报告荷兰残疾护理组织的经验措施：一个定性研究
- 作者：Marjolein van Rooijen;Stephanie Lenzen;Ruth Dalemans;Albine Moser;Anna Beurskens
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2020年第1期
- Patient reported experience measureIntegrated measurementConsolidated framework for implementation researchIntellectual disabilitiesCommunication vulnerableQuality of care;
34.An emerging framework for fully incorporating public involvement (PI) into patient-reported outcome measures (PROMs)

机译：一种完全将公众参与（PI）完全纳入患者报告的结果措施（PROM）的新兴框架
- 作者：J. Carlton;T. Peasgood;S. Khan;R. Barber;J. Bostock;A. D. Keetharuth
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2020年第1期
- Public involvement (PI)Patient and Public Involvement (PPI)Patient reported outcome measures (PROMs)Questionnaire;
35.Patient-reported outcome measures in the interaction between patient and clinician – a multi-perspective qualitative study

机译：患者报告的患者与临床医生相互作用的结果措施 - 一种多视角定性研究
- 作者：Caroline Trillingsgaard Mejdahl;Liv Marit Valen Schougaard;Niels Henrik Hjollund;Erik Riiskj?r;Kirsten Lomborg
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2020年第1期
- Patient-reported outcome (PRO) measuresOutpatient follow-upQualitative researchInterpretive descriptionPatient-clinician interactionCommunication;
36.Development of an item pool for a questionnaire on the psychosocial consequences of hypertension labelling

机译：关于调查问卷的项目池对高血压标签的心理社会后果
- 作者：János Valery Gyuricza;Ana Flávia Pires Lucas d’Oliveira;Lucas Bastos Marcondes Machado;John Brodersen
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2020年第1期
- Psychosocial consequencesPatient-reported outcome measureHypertension;
37.Development and psychometric properties of the Thai Graves’ ophthalmopathy quality of life (GO-QOL) questionnaire

机译：泰国坟墓眼科疗法生活质量（Go-QOL）问卷的发展和心理学特性
- 作者：Mingkwan Lumyongsatien;Benjama Keeratidamkerngsakul;Kanokrat Pornpanich;Sumalee Vangveeravong;Preamjit Saonanon;Damrong Wiwatwongwana;Pornchai Mahaisavariya;Orapan Aryasit;Krit Pongpirul
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2020年第1期
- Graves’ ophthalmopathyThyroidQuality of lifeQuestionnaireThai GO-QOL;
38.Development and content validation of the Satisfaction and Experience Questionnaire for Granulocyte Colony-Stimulating Factor (SEQ-G-CSF)

机译：粒细胞菌落刺激因子的满意度和体验调查结果的开发和内容验证（SEQ-G-CSF）
- 作者：Yucel Aylin;Skalicky Anne;Eseyin Olabimpe Ruth;Yucel Emre;Belani Rajesh;Bensink Mark
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Myelosuppressive chemotherapyFebrile neutropeniaG-CSFOn-body injectorOBIContent validationSatisfaction and Experience Questionnaire for Granulocyte Colony-Stimulating FactorSEQ-G-CSF;
39.Translation and cultural adaptation of IPOS (integrated palliative care outcome scale) in Estonia

机译：爱沙尼亚IPOS（综合姑息治疗结果规模）的翻译与文化适应
- 作者：Laissaar Merli;Hallik Riina;Sillaste Pille;Ragun Ulvi;P?rn Mari-Leen;Suija Kaiu
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Patient-reported outcome measureIPOSEstoniaPalliative carePatient reported outcome;
40.Adaptation of the barriers to help-seeking for trauma (BHS-TR) scale: a cross-cultural cognitive interview study with female intimate partner violence survivors in Iceland

机译：适应障碍的帮助寻求创伤（BHS-TR）规模：冰岛女性亲密合作伙伴暴力幸存者的跨文化认知面试研究
- 作者：Thorvaldsdottir Karen Birna;Halldorsdottir Sigridur;Johnson Rhonda M.;Sigurdardottir Sigrun;Saint Arnault Denise
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- TranslationCross-cultural adaptationCognitive interviewsSelf-reported measuresTraumaHelp-seekingInterpersonal violenceHealth-related quality of life;
41.Epilepsy and quality of life in Iranian epileptic patients

机译：伊朗癫痫患者的癫痫和生活质量
- 作者：Bahareh Honari;Seyed Mehran Homam;Maryam Nabipour;Zahra Mostafavian;Arezou Farajpour;Nyusha Sahbaie
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- EpilepsyQOLIE-31 questionnaireQuality of life;
42.Activity competence among infants and toddlers with developmental disabilities: Rasch analysis of the Infant Toddler Activity Card Sort (ITACS)

机译：具有发展障碍的婴儿和幼儿之间的活动能力：婴儿幼儿活动卡的Rasch分析（ITACS）
- 作者：Hoyt Catherine R.;L’Hotta Allison J.;Bauer Anna H.;Chang Chih-Hung;Varughese Taniya E.;Abel Regina A.;King Allison A.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Developmental delayCaregiver reported outcomeActivityParticipationCompetenceRasch analysis;
43.Reference values for the short forms of the Singapore Caregiver Quality of Life Scale

机译：新加坡护理人员生活质量的简短形式的参考价值
- 作者：Lee Chun Fan;Wee Hwee Lin;Teo Irene;Lee Geok Ling;Thumboo Julian;Cheung Yin Bun;Neo Shirlyn H. S.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- CaregiversNeoplasmsReference valuesQuality of lifeSingapore caregiver quality of life scaleSCQOLS-15SCQOLS-10Surveys and questionnaires;
44.Experiences of patients who developed oral mucositis during solid neoplasms treatment: a Ugandan qualitative study

机译：在固体肿瘤治疗过程中发育口腔粘膜炎的患者的经验：乌干达定性研究
- 作者：Kamulegeya Adriane;Nakanjako Damalie;Orem Jackson;Mayanja-Kizza Harriet
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Oral mucositisChemotherapy side effectsCancer;
45.Development of a symptom menu to facilitate Goal Attainment Scaling in adults with Down syndrome-associated Alzheimer’s disease: a qualitative study to identify meaningful symptoms

机译：症状菜单的发展，以促进成人患者患有唐氏综合征相关的阿尔茨海默病的目标达累：定性研究，以识别有意义的症状
- 作者：Knox Kari;Stanley Justin;Hendrix James A.;Hillerstrom Hampus;Dunn Taylor;Achenbach Jillian;Chicoine Brian A.;Lai Florence;Lott Ira;Stanojevic Sanja;Howlett Susan E.;Rockwood Kenneth
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Down syndromeAlzheimer’s diseaseDementiaGoal attainment scalingSymptomsQualitative study;
46.Patient-led use of patient-reported outcome measure in self-Management of a Rotator Cuff Injury

机译：患者LED使用患者报告的旋转袖口损伤的自我管理中的结果测量
- 作者：Santana Maria J.;Tomkins Darrell J.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
47.A qualitative exploration of the patient experience of erosive and non-erosive hand osteoarthritis

机译：对腐蚀性和非侵蚀手骨关节炎患者体验的定性探索
- 作者：Panter Charlotte;Berry Pamela;Chauhan Deven;Fernandes Sofia;Gatsi Sally;Park Josephine;Wells Jane R.;Arbuckle Rob
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Hand osteoarthritisMichigan Hand Outcomes QuestionnaireConcept elicitationQualitative interviewsReal-time data capturePatient-experiencePatient-reported outcomes;
48.Development of a Patient Reported Measure of Experimental Transplants with HIV and Ethics in the United States (PROMETHEUS)

机译：患者的开发报告了美国艾滋病毒和伦理的实验移植量（Prometheus）
- 作者：Seaman Shanti;Brown Diane;Eno Ann;Yu Sile;Massie Allan B.;Tobian Aaron A. R.;Durand Christine M.;Segev Dorry L.;Wu Albert W.;Sugarman Jeremy
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Acquired immunodeficiency syndromeCare deliveryEthicsOrgan procurement and transplantationPatient-reported experiencesPatient safetyQuality of care;
49.Patient-reported burden of hereditary transthyretin amyloidosis on functioning and well-being

机译：患者报告的遗传性Transthyretin淀粉样变性的负担在功能和福祉上
- 作者：Lovley Andrew;Raymond Kimberly;Guthrie Spencer D.;Pollock Michael;Sanchorawala Vaishali;White Michelle K.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- AmyloidosisBurden of diseaseQuality of lifePatient interviewsQualitativeRare disease;
50.Estimating health state utilities in hemophagocytic lymphohistiocytosis

机译：估算血液活性淋巴管激菌症的健康状态公用事业
- 作者：Nafees Beenish;Lloyd Andrew;Dewilde Sarah
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Hemophagocytic lymphohistiocytosisUltra-orphan drugsHealth state utilitiesQuality of lifeCost-effectiveness analysis;
51.Translation and psychometric evaluation of the Swedish versions of the Nuss Questionnaire modified for Adults and the Single Step Questionnaire

机译：对成人修改的NUSS问卷的瑞典版本的翻译和心理评估和单一逐步问卷
- 作者：Norlander Louise;Karlsson Jan;Anderzén-Carlsson Agneta;Vidlund M?rten;Dreifaldt Mats;Andreasson Jesper;Sundqvist Ann-Sofie
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Factor analysisNuss procedurePectus excavatumPsychometricsQuality of life;
52.Establishing content-validity of a disease-specific health-related quality of life instrument for patients with chronic hypersensitivity pneumonitis

机译：为慢性超敏肺炎患者建立疾病特异性健康相关质量仪器的含量有效性
- 作者：Aronson Kerri I.;Ali Maha;Reshetynak Evgeniya;Kaner Robert J.;Martinez Fernando J.;Safford Monika M.;Pinheiro Laura C.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Cognitive interviewingChronic hypersensitivity pneumonitisHealth-related quality of life;
53.The impact of moderate and severe asthma exacerbations on quality of life: a post hoc analysis of randomised controlled trial data

机译：中度和严重哮喘激增对寿命质量的影响：随机对照试验数据的后HOC分析
- 作者：Briggs Andrew;Nasser Shuaib;Hammerby Eva;Buchs Sarah;Virchow J. Christian
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Allergic asthmaAsthmaHouse dust mite allergic asthmaAsthma exacerbationExacerbationQuality of lifeUtility;
54.Discrete choice experiments or best-worst scaling? A qualitative study to determine the suitability of preference elicitation tasks in research with children and young people

机译：离散选择实验或最糟糕的缩放？确定儿童与青少年研究中偏好诱惑任务的适用性的定性研究
- 作者：Helen J. Rogers;Zoe Marshman;Helen Rodd;Donna Rowen
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- AdolescentBest-worst scalingDiscrete choice experimentPreference-elicitation;
55.Translation and content validity of the Dutch Impact of Vision Impairment questionnaire assessed by Three-Step Test-Interviewing

机译：三步试验面试评估视觉损伤问卷调查问卷的翻译和内容有效性
- 作者：Rausch – Koster T. P.;van der Ham A. J.;Terwee C. B.;Verbraak F. D.;van Rens G. H. M. B.;van Nispen R. M. A.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Exudative retinal diseaseVision impairmentHealth related quality of lifeThree-step test-interviewPatient reported outcome measure;
56.Psychometric properties of a condition-specific PROM for the psychosocial consequences of Labelling hypertension by using Rasch analysis

机译：用RASCH分析通过使用RASCH分析来对贴标高血压的心理社会后果进行病情特异性促销的心理测量性质
- 作者：Gyuricza János Valery;Christensen Karl Bang;d’Oliveira Ana Flávia Pires Lucas;Brodersen John
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- HypertensionPsychosocial consequencesPatient-reported outcomePsychometric properties;
57.Does scrolling affect measurement equivalence of electronic patient-reported outcome measures (ePROM)? Results of a quantitative equivalence study

机译：滚动会影响电子患者报告的结果措施（EPROM）的测量等价性吗？定量等同性研究的结果
- 作者：Shahraz Saeid;Pham Tan P.;Gibson Marc;De La Cruz Marie;Baara Munther;Karnik Sachin;Dell Christopher;Pease Sheryl;Nigam Suyash;Cappelleri Joseph C.;Lipset Craig;Zornow Patrick;Lee Jeff;Byrom Bill
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Patient-reported outcomePatient-reported outcome measuresIntraclass correlationScrollingBYODMeasurement equivalenceLatin Square crossover designePROePROM;
58.The German RECAP questionnaire: linguistic validation and cognitive debriefing in German adults with self-reported atopic eczema and parents of affected children

机译：德国RECAP调查问卷：德国成人的语言验证和认知汇报，具有自我报告的特征湿疹和受影响儿童的父母
- 作者：Gabes Michaela;Tischer Christina;Herrmann Anne;Howells Laura;Apfelbacher Christian
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Atopic dermatitisAtopic eczemaLong-term controlCross-cultural translationContent validity;
59.Impact of comorbidities and treatment burden on general well-being among women’s cancer survivors

机译：合并与治疗负担对女性癌症幸存者中一般福祉的影响
- 作者：Anderson R. T.;Eton D. T.;Camacho F. T.;Kennedy E. M.;Brenin C. M.;DeGuzman P. B.;Carter K. F.;Guterbock T.;Ruddy K. J.;Cohn W. F.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Treatment burdenCancer survivorshipFinancial insecurityGeneral healthComorbiditySelf-management impactHealth literacy;
60.Content validity and psychometric evaluation of the Functional Assessment of Chronic Illness Therapy-Fatigue scale in patients with chronic lymphocytic leukemia

机译：慢性淋巴细胞白血病患者慢性疾病治疗 - 疲劳尺度功能评估的内容有效性与心理测量
- 作者：Eek Daniel;Ivanescu Cristina;Corredoira Laura;Meyers Oren;Cella David
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Chronic lymphocytic leukemiaContent validityFACIT-FatiguePsychometric properties;
61.Assessing the acceptability, reliability, and validity of the EORTC Quality of Life Questionnaire (QLQ-C30) in Kenyan cancer patients: a cross-sectional study

机译：评估肯尼亚癌症患者的生活质量问卷（QLQ-C30）的可接受性，可靠性和有效性：横断面研究
- 作者：Davda Jasmine;Kibet Hillary;Achieng Emmah;Atundo Lawrence;Komen Truphena
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- CancerQuality of lifeKenyaValidationEORTC QLQ-C30;
62.Vision-related quality of life in adults with severe peripheral vision loss: a qualitative interview study

机译：具有严重外周视觉损失的成人视觉相关的生活质量：定性访谈研究
- 作者：Lange Ryan;Kumagai Abigail;Weiss Sara;Zaffke Katherine B.;Day Sherry;Wicker Donna;Howson Ashley;Jayasundera K. Thiran;Smolinski Lori;Hedlich Christina;Lee Paul P.;Massof Robert W.;Stelmack Joan A.;Carlozzi Noelle E.;Ehrlich Joshua R.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Vision-related quality of lifeGlaucomaRetinitis pigmentosaPeripheral field lossPeripheral visionLow visionVision rehabilitationPatient-reported outcomeQualitative researchInterview;
63.Psychometrics of three Swedish physical pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)?: pain interference, fatigue, and physical activity

机译：来自患者报告的结果测量信息系统（PROMIS）的三个瑞典物理小儿项目库的精神仪表？：疼痛干扰，疲劳和身体活动
- 作者：Carlberg Rindestig Frida;Wiberg Marie;Chaplin John Eric;Henje Eva;Dennhag Inga
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
64.Creating idiometric short-form measures of cognitive appraisal: balancing theory and pragmatics

机译：创建认知评估的成熟短态测量：平衡理论和语用学
- 作者：Schwartz Carolyn E.;Stark Roland B.;Rapkin Bruce D.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- AppraisalResponse shiftIndividual differencesCognitiveMeasurementIdiometric;
65.Patient-reported outcomes in breast cancer FDA drug labels and review documents

机译：患者报告的乳腺癌FDA药物标签和审查文件的结果
- 作者：Hong Kyungwan;Majercak Kayleigh R.;Villalonga-Olives Ester;Perfetto Eleanor M.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
66.Quality of life assessments in clinical practice using either the EORTC-QLQ-C30 or the SEIOQL-DW: a randomized study

机译：使用EORTC-QLQ-C30或SEIOQL-DW的临床实践中临床实践中的生活质量评估：随机研究
- 作者：Kettis ?sa;Fagerlind Hanna;Fr?din Jan-Erik;Glimelius Bengt;Ring Lena
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- OncologyClinical practiceEORTC-QLQ-C30SEIQOL-DWIndividualized quality of life;
67.Patient perspectives on digital patient reported outcomes in routine care of inflammatory bowel disease

机译：数字患者的患者观点报告了炎症性肠病常规护理中的结果
- 作者：Nielsen Amalie S?gaard;Appel Charlotte W.;Larsen Birgit Furstrand;Kayser Lars;Hanna Lisa
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Digital patient reported outcomesDigital healtheHealth;
68.Psychometric properties of FACIT-Fatigue in systemic lupus erythematosus: a pooled analysis of three phase 3 randomised, double-blind, parallel-group controlled studies (BLISS-SC, BLISS-52, BLISS-76)

机译：Systemic Lupus狼疮性疲劳的心理测量特性：三相3阶段随机，双盲，平行组对照研究的汇总分析（Bliss-SC，Bliss-52，Bliss-76）
- 作者：Rendas-Baum Regina;Baranwal Nishtha;Joshi Ashish V.;Park Josephine;Kosinski Mark
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- FACIT-FatigueFatiguePatient-reported outcomesPsychometricQuality of lifeSystemic lupus erythematosusValidity;
69.Cultural and linguistic adaptation of the multi-dimensional OXCAP-MH for outcome measurement of mental health among people living with HIV/AIDS in Uganda: the Luganda version

机译：乌干达艾滋病毒/艾滋病毒健康成果测量多维牛卡-MH的文化和语言适应乌干达：卢瓦顿版
- 作者：Katumba Kenneth R.;Laurence Yoko V.;Tenywa Patrick;Ssebunnya Joshua;Laszewska Agata;Simon Judit;Vassall Anna;Kinyanda Eugene;Greco Giulia
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Capability approachMental healthQuality of lifeHIV/AIDSUgandaPROMs;
70.Only two subscales of the Coping Strategies Questionnaire are culturally relevant for people with chronic low back pain in Nigerian Igbo populations: a cross-cultural adaptation and validation study

机译：应对策略调查问卷的两个分量表在尼日利亚人口中患有慢性低腰疼痛的人进行文化相关：跨文化适应和验证研究
- 作者：Igwesi-Chidobe Chinonso Nwamaka;Sorinola Isaac Olubunmi;Godfrey Emma Louise
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Pain coping strategiesChronic low back painCross-culturalNigeriaAfricaRural;
71.Translation and validation of the Urdu version of the European organization for research and treatment of cancer core quality of life questionnaire (EORTC QLQ-C30) and brain module (QLQ-BN20) in primary brain tumor patients

机译：欧洲欧洲肿瘤核心质量（EORTC QLQ-C30）和脑模块（QLQ-BN20）在原发性脑肿瘤患者中的癌症和治疗组织乌尔都语版本的翻译与验证
- 作者：Zahid Nida;Martins Russell Seth;Zahid Wajeeha;Khalid Wardah;Azam Iqbal;Bhamani Shireen Shehzad;Asad Nargis;Ahmad Khabir;Jabbar Adnan Abdul;Shamim Muhammad Shahzad;Khan Rashid Jooma;Javed Gohar;Bari Ehsan;Enam Syed Ather
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Primary brain tumorQuality of lifeValidityReliabilityResilienceDepressionCorrelationUrdu;
72.Crohn’s disease and ulcerative colitis patient-reported outcomes signs and symptoms for the remote management of inflammatory bowel disease during the COVID-19 pandemic

机译：克罗恩病和溃疡性结肠炎患者报告的结果征兆和症状在Covid-19大流行期间炎症性肠病的远程管理
- 作者：Pinto Sergio;Loddo Erica;Paba Salvatore;Favale Agnese;Chicco Fabio;Onali Sara;Usai Paolo;Fantini Massimo Claudio
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Patient-reported outcomeInflammatory bowel diseaseCOVID-19Telemedicine;
73.A qualitative study to explore symptoms and impacts of pediatric and adolescent Crohn’s disease from patient and caregiver perspective

机译：一种定性研究，探讨患者和照顾者视角下儿科和青少年克罗恩病的症状和影响
- 作者：Newton Louise;Delbecque Laure;Co?kun Ufuk;Symonds Tara;Clegg Jennifer;Hunter Theresa
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Crohn’s diseasePediatricAdolescentParentCaregiverObserverConcept elicitationQualitativeInterview;
74.Utilizing Patient Reported Outcome Measures (PROMs) in ambulatory oncology in Alberta: Digital reporting at the micro, meso and macro level

机译：利用患者报告的艾伯塔省肿瘤学报告的结果措施（PROMS）：在微观，间谍和宏观层面上的数字报告
- 作者：Watson Linda;Delure Andrea;Qi Siwei;Link Claire;Chmielewski Lindsi;Photitai éclair;Smith Louise
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第2期
- Patient Reported Outcome MeasuresPROMsPROsCancerSymptom complexity levelComplexity algorithmPRO dashboardsSymptom managementRoutineDashboardsAmbulatory oncologyMicroMesoMacroAggregatePerson centred carePersonalized care;
75.Patient-proxy agreement on change in acute stroke patient-reported outcome measures: a prospective study

机译：患者代理协议关于急性中风患者报告的结果措施的变化：一项潜在研究
- 作者：Lapin Brittany R.;Thompson Nicolas R.;Schuster Andrew;Katzan Irene L.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Patient-reported outcome measuresProxyPROMISAgreementReliabilityStroke;
76.Measuring value in healthcare from a patients’ perspective

机译：从患者的角度测量医疗保健的价值
- 作者：Dean Stafford;Al Sayah Fatima;Johnson Jeffrey A.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第2期
77.Dutch reference values for the Patient-Reported Outcomes Measurement Information System Scale v1.2 - Global Health (PROMIS-GH)

机译：荷兰患者报告的结果测量信息系统规模V1.2 - 全球健康（PROMIS-GH）的荷兰参考值
- 作者：Elsman Ellen B. M.;Roorda Leo D.;Crins Martine H. P.;Boers Maarten;Terwee Caroline B.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- PROMISGlobal HealthGeneral population reference valuesPatient-reported outcome measures;
78.Content validation of a self-report daily diary in patients with sickle cell disease

机译：镰状细胞疾病患者自我报告日记的内容验证
- 作者：White Michelle K.;Saucier Cory;Bailey Miranda;D’Alessio Denise;Foster April;St. Pierre Danielle;Raymond Kimberly
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
79.Psychometric validation of the Female Sexual Distress Scale-Desire/Arousal/Orgasm

机译：对女性性痛苦的心理测量验证 - 欲望/唤起/性高潮
- 作者：Derogatis Leonard R.;Revicki Dennis A.;Rosen Raymond C.;Jordan Robert;Lucas Johna;Spana Carl
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Female sexual dysfunctionHSDDFSADBremelanotideFSDS-DAOPsychometric characteristicsPatient-reported outcomesInstrument validation;
80.The use of patient-reported measures in epilepsy care: the Calgary Comprehensive Epilepsy Program experience

机译：使用患者报告的癫痫护理措施：卡尔加里综合癫痫节目经验
- 作者：Delgado-García Guillermo;Wiebe Samuel;Josephson Colin B.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第2期
81.The value of the patient global health assessment in polyarticular juvenile idiopathic arthritis: a nested cohort study

机译：多体幼年特发性关节炎患者全球健康评估的价值：嵌套队列研究
- 作者：Trachtman Rebecca;Issa Rula;Pan Stephanie;Wilson Karen M.;Lovell Daniel J.;Onel Karen B.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
82.Score equivalence of paper-, tablet-, and interactive voice response system-based versions of PROMIS, PRO-CTCAE, and numerical rating scales among cancer patients

机译：基于纸张，平板电脑和交互式语音响应系统的普罗旺斯，Pro-CTCAE和癌症患者的数值评级尺度的评分等价性
- 作者：Lee Minji K.;Beebe Timothy J.;Yost Kathleen J.;Eton David T.;Novotny Paul J.;Dueck Amylou C.;Frost Marlene;Sloan Jeff A.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Mode effectMode of administrationPatient-reported outcomesPRO-CTCAEPROMISNumerical rating scalePaperInteractive voice responseTablet computerDifferential item functioning;
83.Measuring health-related quality of life in patients with rare disease

机译：测量罕见疾病患者的健康状生活质量
- 作者：Lenderking William R.;Anatchkova Milena;Pokrzywinski Robin;Skalicky Anne;Martin Mona L.;Gelhorn Heather
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Rare diseaseHRQoLClinical outcome assessment (COA)Item banksMeasure adaptationFDAEmbedded interviewsDisease-specificMulti-dimensional responder index;
84.Symptoms, impacts, and suitability of the Pulmonary Arterial Hypertension – Symptoms and Impact (PAH-SYMPACT?) questionnaire in patients with chronic thromboembolic pulmonary hypertension (CTEPH): a qualitative interview study

机译：肺动脉高压的症状，影响和适用性 - 慢性血栓栓塞肺动脉高压患者的症状和影响（PAH-SYMACCACT？）问卷（CTEPH）：定性访谈研究
- 作者：Currie Brooke;Davies Evan;Beaudet Amélie;Stassek Larissa;Kleinman Leah
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- CTEPHPAH-SYMPACT?Qualitative studyPatient-reported outcomeHealth-related quality of life;
85.Linking scores on the 4- and 5-item versions of the Satisfaction with Life Scale in people with traumatic brain, spinal cord, or burn injury: a National Institute on Disability, Independent Living, and Rehabilitation Research Model System study

机译：在创伤性脑，脊髓或烧伤伤害的人们中，将分数与生命规模的满意度联系在患有创伤性脑，脊髓或烧伤的人的满意度：国家残疾，独立生活和康复研究模式研究所
- 作者：Bamer Alyssa M.;McMullen Kara;Deutsch Anne;Sevigny Mitch;Mroz Tracy;Wiechman Shelly A.;Schneider Jeffrey C.;Amtmann Dagmar
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
86.Responsiveness of Nepali version of Oswestry Disability Index (ODI) on individuals with non-specific low back pain

机译：Oswestry残疾指数（ODI）对具有非特定低腰疼痛的个人的响应性
- 作者：Binaya Kandel;Kajal Thapa;Ranjeeta Acharya S.;Govinda Nepal
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Disability evaluationMinimal clinically important differencePatient reported outcome measureReproducibility;
87.The Norwegian PROMIS-29: psychometric validation in the general population for Norway

机译：挪威普罗基斯 - 29：挪威一般人群的心理验证
- 作者：Garratt Andrew M.;Coste Jo?l;Rouquette Alexandra;Valderas José M.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- PROMIS-29EQ-5D-5LValidityRasch analysisGeneral population;
88.Validation and reliability of the Dutch version of the EORTC QLQ-NMIBC24 Questionnaire Module for patients with non-muscle-invasive bladder cancer

机译：用于非肌肉侵入性膀胱癌的患者的EORTC QLQ-NMIBC24问卷模块的验证和可靠性
- 作者：Ripping Theodora M.;Westhoff Ellen;Aaronson Neil K.;Van Hemelrijck Mieke;Rammant Elke;Witjes J. Alfred;Kiemeney Lambertus. A.;Aben Katja K. H.;Vrieling Alina
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Bladder cancerQuality of lifeValidation studiesEORTC questionnaire;
89.Measuring patient-reported physical functioning and fatigue in myelodysplastic syndromes using a modular approach based on EORTC QLQ-C30

机译：利用基于EORTC QLQ-C30的模块化方法测量患者报告的骨髓增生综合征中的患者的物理功能和疲劳
- 作者：Regnault Antoine;Pompilus Farrah;Ciesluk Anna;Mazerolle Flora;Bejar Rafael;Fram Robert J.;Faller Douglas V.;Marquis Patrick;Bell Jill A.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Patient-reported outcomesMyelodysplastic syndromesAcute myeloid leukemiaChronic myelomonocytic leukemiaFatigueEORTC item libraryModular measurement approachPhysical functioning;
90.Implementation of a cloud-based electronic patient-reported outcome (ePRO) platform in patients with advanced cancer

机译：在晚期癌症患者中实施基于云的电子患者报告的结果（EPRO）平台
- 作者：Generalova Olga;Roy Mohana;Hall Evan;Shah Sumit A.;Cunanan Kristen;Fardeen Touran;Velazquez Brianna;Chu Gilbert;Bruzzone Bianca;Cabot Anna;Fisher George A.;Srinivas Sandy;Fan Alice C.;Haraldsdottir Sigurdis;Wakelee Heather A.;Neal Joel W.;Padda Sukhmani K.;Johnson Tyler;Heestand Gregory M.;Hsieh Robert W.;Ramchandran Kavitha
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Patient reported outcomesQuality of lifeCare-deliveryHealthcare utilization;
91.Qualitative and psychometric approaches to evaluate the PROMIS pain interference and sleep disturbance item banks for use in patients with rheumatoid arthritis

机译：定性和心理测量方法，以评估类风湿性关节炎患者使用的促销痛苦干扰和睡眠障碍物品银行
- 作者：Becker Brandon;Raymond Kimberly;Hawkes Carol;Foster April Mitchell;Lovley Andrew;Saucier Cory;Rizio Avery A.;Bjorner Jakob Bue;Kosinski Mark
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Rheumatoid arthritisPsychometric evaluationContent validityConcept elicitationCognitive debriefingPatient-reported outcomes measurement information systemPatient-reported outcomePainSleep disturbanceShort form;
92.Validity arguments for patient-reported outcomes: justifying the intended interpretation and use of data

机译：患者报告的结果的有效性论据：证明预期的解释和数据的使用
- 作者：Hawkins Melanie;Elsworth Gerald R.;Nolte Sandra;Osborne Richard H.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Validity testing theoryValidationHealth Literacy QuestionnaireValidityQuantitative researchQualitative researchPatient-reported outcome measurePROPROMHealth literacy;
93.Assessing quality of life in pediatric fibrous dysplasia and McCune Albright syndrome: PEDS-QL and HADS data from the Fibrous Dysplasia Foundation Patient Registry

机译：评估儿科纤维发育不良和MCCUNE ALBRIGHER综合征的生活质量：PEDS-QL并患有纤维发育不良基础患者登记处的数据
- 作者：Konradi Amanda
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Fibrous dysplasiaQuality of lifeDepressionAnxietyChildrenMcCune Albright syndromePEDS-QLHADS;
94.Feasibility of assessing utilities with a single-item standard gamble questionnaire in patients with melanoma

机译：在黑色素瘤患者中使用单项标准赌博问卷评估公用事业的可行性
- 作者：Blome Christine;K?hler Katharina C.;Wagner Tobias;Hauschild Axel;Augustin Matthias
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
95.A novel patient-reported outcome instrument assessing the symptoms of paroxysmal nocturnal hemoglobinuria, the PNH-SQ

机译：一种新的患者报告的结果仪表评估阵发性夜间血红蛋白尿，PNH-SQ的症状
- 作者：Daly R. Paola;Jalbert Jessica J.;Keith Shannon;Symonds Tara;Shammo Jamile
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- PNHPROQoLSymptom;
96.The development and validation of a revised version of the Medical Outcomes Study Sleep Scale (MOS Sleep-R)

机译：经修订版的医学成果研究睡眠量表的开发和验证（MOS睡眠-R）
- 作者：Yarlas Aaron;White Michelle K.;St. Pierre Danielle G.;Bjorner Jakob B.
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Psychometric validationSleepSleep disturbanceSomnolencePRO development;
97.From statistics to clinics: the visual feedback of PROMIS? CATs

机译：从统计到诊所：促销的视觉反馈？猫
- 作者：van Muilekom Maud M.;Luijten Michiel A. J.;van Oers Hedy A.;Terwee Caroline B.;van Litsenburg Rapha?le R. L.;Roorda Leo D.;Grootenhuis Martha A.;Haverman Lotte
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Visual feedbackPatient reported outcome measures (PROMs)Patient-reported outcomes measurement information system (PROMIS?)Computerized adaptive testing (CAT)CliniciansPediatric patients and parents;
98.Translation and cross-cultural adaptation of a Nepali version of the Dutch Participation and Activity Inventory for Children and Youth (PAI - CY) with visual impairment

机译：荷兰荷兰语参与和活动清单的翻译与跨文化适应儿童和青年（PAI - CY）的视觉损伤
- 作者：Adhikari Srijana;Elsman Ellen Bernadette Maria;van Nispen Ruth Marie Antoinette;van Rens Fleur;Oli Radhika Upreti;Thapa Suman S.;van Rens Gerardus Hermanus Maria Bartholomeus
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- NepalChildrenVisual impairmentBlindnessParticipation and activity;
99.Patients’ satisfaction with long-acting injectable somatostatin analog therapy for neuroendocrine tumors

机译：患者对神经内分泌肿瘤的长效注射生长抑制素模拟疗法的满意度
- 作者：Darden Christina;Price Mark;Ray David;Goldstein Grace;Goss Diana;Bennett Lee;Garbinsky Diana;Thota Ramya
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- Neuroendocrine tumorSerial surveyPatient experienceSatisfactionInterviewsSomatostatin analog;
100.The Swedish RAND-36: psychometric characteristics and reference data from the Mid-Swed Health Survey

机译：瑞典兰德-36：中瑞健康调查的心理学特征和参考资料
- 作者：Ohlsson-Nevo Emma;Hiyoshi Ayako;Norén Paulina;M?ller Margareta;Karlsson Jan
- 期刊名称：《Journal of Patient-Reported Outcomes》 | 2021年第1期
- RAND-36Reference dataQuality of lifeSwedish;

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