A Culturally Appropriate, Web-Based Technology for Anonymous Data Collection for Public Health Research in Culturally Diverse Populations

摘要

This case study describes how a Web-based technology helped a small nonprofit cancer education and research organization collect data anonymously from Native American cancer survivors from across the North American continent. The system described herein, known as the Privacy Broker System, is adaptable to different cultures and languages. The Privacy Broker System made cancer education and research, which was previously infeasible due to high costs and regulatory constraints, possible.