「患者体験」を映像と音声で伝える: 「健康と病いの語り」データベース（DIPEx）の理念と実践

摘要

しているが，それらのサイトとDIPExはどのような点で異なるのだろうか。DIPExを支える理念と英国におけrnる実践，日本でも始まった「がん患者の語り」データベース作成プロジェクトの進捗状況について報告する。%DIPEx is a database of personal experiences of health and illness created by a research group at Oxford University, UK, which includes over 1,500 patient interviews. Part of the database is made accessible to public through the Internet. Patients, family members, and medical professionals can access the narratives of various illnesses in the form of video clips. Recently, several online-databases for illness accounts in print and weblogs have come into operation in Japan, but how does DIPEx differ from such databases? The author reviews the ideals and practices of DIPEx in the UK and reports on the current status of the Cancer Patient Narrative Database Project taking place in Japan.