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Care-Related Quality of Life of Caregivers of Beta-Thalassemia Major Children: An Epidemiological Study in Eastern India

机译:与β-地中海贫血症的护理人员有关的护理生活质量:印度东部的流行病学研究

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Caregivers are the persons who provide care at the time of distress or illness. They face many stress and strain to provide the best possible medical care for their children. There are very few studies that explored the care-related quality of life (CarerQoL) of the caregivers of thalassemic children and its correlates. With this background, the current study was designed to explore the CarerQoL of the caregivers of β -Thalassemia Major ( β -TM) children and its various correlates. It was a cross-sectional observational study conducted among caregivers of β -TM children attending a tertiary care health facility of Eastern India in between May 2016 and April 2017 with a structured schedule. The median CarerQoL score was found to be 5 with an interquartile range of 4–7 (range: 11). In the final multivariable logistic regression model, care receivers’ (thalassemic children) age [adjusted odds ratio (AOR): 2.2 (1.2–4.2)], spleen status [AOR: 4.1 (2.0–8.7)], blood transfusion frequency [AOR: 2.1 (1.1–3.9)], and quality of life (QoL) [AOR: 3.0 (1.6–5.5)] and caregivers’ educational level [AOR: 2.3 (1.2–4.1)], perceived social discrimination [AOR: 2.3 (1.3–4.1)], debt [AOR: 2.3 (1.2–4.3)], nongovernmental organization assistance [AOR: 2.0 (1.0–4.0)], and wage loss due to seeking treatment [AOR: 1.9 (1.1–3.4)] were significant predictors of CarerQoL of the study participants adjusted with their age, sex, working status, per-capita monthly income, knowledge level related to the disease, and care receivers’ comorbidity status. To conclude, CarerQoL of the study participants were significantly associated with QoL of their wards. Other significant associates of CarerQoL were caregivers’ education level, financial profile, patients’ age, and their clinico-therapeutic profile.
机译:照顾者是在痛苦或疾病时提供护理的人。他们面临着许多压力和压力,为他们的孩子提供最佳的医疗服务。很少有研究,探讨了脑神经儿童护理人员的关心生活质量(Carerqol)及其相关性。有了这种背景,目前的研究旨在探索β-邻血症症的护理人员的Carerqol及其各种相关性。这是在2016年5月至2017年5月之间的第三届印度的β-TM儿童的护理人员中进行了一个横断面观察研究,以2016年5月至2017年4月,2017年4月的建立时间表。中位数Carerqol得分被发现为5个,间条款范围为4-7(范围:11)。在最终的多变量逻辑回归模型中,护理接收器(Thalassemic Senth)年龄[调整赔率比(AOR):2.2(1.2-4.2)],脾脏状态[AOR:4.1(2.0-8.7)],输血频率[AOR :2.1(1.1-3.9)]和生活质量(QOL)[AOR:3.0(1.6-5.5)]和护理人员的教育水平[AOR:2.3(1.2-4.1)],社会歧视[AOR:2.3( 1.3-4.1),债务[AOR:2.3(1.2-4.3)],非政府组织援助[AOR:2.0(1.0-4.0)],由于寻求治疗而导致的工资丧失[AOR:1.9(1.1-3.4)研究参与者的CarerQol的重要预测因子根据其年龄,性别,工作状态,人均月收入,与疾病相关的知识水平进行调整,以及护理接收者的合并症状态。为了得出结论,研究参与者的Carerqol与他们病房的QoL有关。 Carerqol的其他重要伙伴是护理人员的教育水平,财务状况,患者年龄及其临床治疗概况。

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