Stages of Psychological and Pedagogical Assistance in Complex Rehabilitation Program for Children with Severe Chronic Hereditary Metabolic Diseases (at the Model of Mucopolysaccharidosis)

摘要

The diffusion of antenatal screening programmes for Down syndrome has triggered much discussion about their powerful potential. The article contains the issue of correction-pedagogical influence, depending on severity and duration of the disease, structure of the health disorders, cognitive impairment grade, and type of the emotional reactions and behavioral characteristics of the child; that means independence on the child's age. The stages of corrective and pedagogical assistance, ways of interaction with family, organization of educational and training process for children with hereditary metabolic diseases (at the model of mucopolysaccharidosis) are described. It is proved, that including the corrective and pedagogical assistance into the rehabilitation process provides specialists’ control of the psychic development dynamics as one of the most significant indicators of children health, increases efficacy of enormous financial costs facilitating socialization and increasing psychological potential of the able-bodied family members preserving.