SOCIOLOGICAL ASPECTS OF CONFLICTS IN A DIALYSIS CENTER BETWEEN THE PHYSICIANS AND THE PARENTS OF CHILDREN IN THE TERMINAL RENAL FAILURE STAGE OF CHRONIC KIDNEY DISEASE

摘要

Two main problems arise when alloting roles to parents and to physicians.On one hand the diet that the sick child should strictly follow in order to survive, which is differently interpreted by the parents according to their cultural, religious and social background and whether they come from the town or from the country. On the other the child'sattendance at school, which is highly recommended by the research physician who is concerned with the socialization of the patient-subject.I spent two years (1977-79) at “Les Enfants-Malades”, a children's hospital in Paris, in a dialysis center where the patients are dialyzed several times a week. The methods I used consisted in participant observation, interwieving doctors, nurses in the unit. I also attended once a week for six months the consultations dealing with the children who had received transplants.The problematics regarding this illness are linked to a broader issue: the socialization of non reducible handicaps.