Deficient knowledge in adult Turner syndrome care as an incentive to found Turner centers in Germany

Elin Kahlert; Martina Blaschke; Knut Brockmann; Clemens Freiberg; Onno E Janssen; Nikolaus Stahnke; Domenika Strik; Martin Merkel; Alexander Mann; Klaus-Peter Liesenk?tter; Heide Siggelkow

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Deficient knowledge in adult Turner syndrome care as an incentive to found Turner centers in Germany

机译：对成人特纳综合症护理的知识不足，导致在德国成立特纳中心的动机

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ObjectiveTurner syndrome (TS) is characterized by the complete or partial loss of the second sex chromosome and associated with a wide range of clinical manifestations. We aimed to assess the medical care of adult patients with TS in Germany.

机译：ObjectiveTurner综合征（TS）的特征是第二性染色体完全或部分丢失，并伴有广泛的临床表现。我们旨在评估德国成人TS患者的医疗护理。

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《Endocrine Connections》 |2019年第11期|共10页
作者
Elin Kahlert; Martina Blaschke; Knut Brockmann; Clemens Freiberg; Onno E Janssen; Nikolaus Stahnke; Domenika Strik; Martin Merkel; Alexander Mann; Klaus-Peter Liesenk?tter; Heide Siggelkow;
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中图分类内科学;
关键词
Turner syndromeadult heightcardiovascular involvementmedical careTurner centers;

机译：特纳综合征成人身高心血管受累医疗特纳中心;

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专利

1. Deficient Medical Care for Adults with the Turner Syndrome [J] . Carolyn Bondy Vladimir K. Bakalov Eileen Dunn Lange and Irene Ceniceros Annals of Internal Medicine . 2006,第11期

机译：特纳综合征成人的医疗不足
2. Care of adult women with Turner syndrome: the state of affairs in Germany [J] . Mette H Viuff, Claus H Gravholt Endocrine Connections . 2019,第12期

机译：患有特纳氏综合症的成年女性的护理：德国的状况
3. Readiness for transition to adult care in adolescents and young adults with Turner syndrome [J] . Sheanon Nicole M., Beal Sarah J., Kichler Jessica C., Journal of pediatric endocrinology & metabolism: JPEM . 2020,第9期

机译：准备在患有特纳综合征的青少年和年轻成年人过渡到成人护理
4. Ovarian hormone treatment in adults with Turner syndrome [C] . Gerard S. Conwa National Institute of Child Health and Human Development, National Institute of Health . 2006

机译：卵巢激素治疗成年人综合征
5. The New Face of Genetics: Education of the Medical Community to Improve Patient Satisfaction. A Comparison of 22q11.2 Deletion Syndrome and Turner Syndrome. [D] . Moser, Cory R. 2013

机译：遗传学的新面貌：医学界对提高患者满意度的教育。 22q11.2删除综合征和特纳综合征的比较。
6. Deficient knowledge in adult Turner syndrome care as an incentive to found Turner centers in Germany [O] . Elin Kahlert, Martina Blaschke, Knut Brockmann, 2019

机译：对成人特纳综合症护理的知识不足导致在德国成立特纳中心的动机
7. Deficient knowledge in adult care as an incentives for founding Turner centers in Germany [O] . Elin Kahlert, Martina Blaschke, Knut Brockmann, 2019

机译：成人护理中的知识作为在德国创造特纳中心的激励措施
8. Growth and Growth Hormone Therapy in Turner Syndrome (Groei en Groeihormoon Behandeling bij Patienten met het Syndroom van Turner) [R] . Rongen-Westerlaken, C. 1992

机译：特纳综合症的生长和生长激素治疗（Groei en Groeihormoon Behandeling bij patienten遇见het syndroom van Turner）

Deficient knowledge in adult Turner syndrome care as an incentive to found Turner centers in Germany

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