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Managing Uncertainty in the Context of Clubfoot Care: Exploring the Value of Uncertainty Management Theory and the Sense of Virtual Community

机译:在马蹄内翻足护理中处理不确定性:探索不确定性管理理论和虚拟社区意识的价值

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摘要

Serious health conditions, such as clubfoot, could be a major source of uncertainty and stress for parents of children affected. How parents deal with uncertainty and stress as related to their child’s health condition is of interest for medical professionals and health communicators alike. While physicians remain a preferred source of health information, during medical encounters or via phone and email communication, many individuals seek out health information on the Internet, including in online support communities. This study explored the connections between Uncertainty Management Theory (UMT) constructs and the potential contribution of the sense of virtual community (SOVC) to the UMT framework. The results of this research suggest that the UMT needs to be adapted for use in online contexts. One way is to include theoretical constructs, such as the sense of virtual community, specifically developed to measure online interactions. A modified and updated Uncertainty Management Theory could be useful in exploring, analyzing and understanding online behaviors related to health conditions such as clubfoot and thus contribute substantially to what we know about caregivers in their role as uncertainty managers.
机译:严重的健康状况(例如马蹄内翻足)可能是受影响儿童父母的不确定性和压力的主要来源。父母如何应对与孩子健康状况有关的不确定性和压力,这对医学专业人士和健康交流者都非常重要。尽管医生仍然是健康信息的首选来源,但在医疗过程中或通过电话和电子邮件通信,许多人还是在Internet上(包括在线支持社区中)寻找健康信息。这项研究探讨了不确定性管理理论(UMT)构造与虚拟社区意识(SOVC)对UMT框架的潜在贡献之间的联系。这项研究的结果表明,UMT需要进行调整以用于在线环境。一种方法是包括理论构建,例如虚拟社区的感觉,专门用于衡量在线互动。修改和更新的不确定性管理理论可能有助于探索,分析和理解与健康状况(例如马蹄内翻足)相关的在线行为,从而对我们所知道的照料者作为不确定性管理者的作用做出了重要贡献。

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