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Evaluation of patient perception towards dynamic health data sharing using blockchain based digital consent with the Dovetail digital consent application: A cross sectional exploratory study

机译:使用基于Dovetail数字同意书的基于区块链的数字同意书评估患者对动态健康数据共享的感知:一项横断面探索性研究

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摘要

New patient-centric integrated care models are enabled by the capability to exchange the patient’s data amongst stakeholders, who each specialise in different aspects of the patient’s care. This requires a robust, trusted and flexible mechanism for patients to offer consent to share their data. Furthermore, new IT technologies make it easier to give patients more control over their data, including the right to revoke consent. These characteristics challenge the traditional paper-based, single-organisation-led consent process. The Dovetail digital consent application uses a mobile application and blockchain based infrastructure to offer this capability, as part of a pilot allowing patients to have their data shared amongst digital tools, empowering patients to manage their condition within an integrated care setting.
机译:通过以利益相关者之间交换患者数据的能力,新的以患者为中心的综合护理模型得以实现,每个利益相关者都专门研究患者护理的不同方面。这就需要一种健壮,可靠和灵活的机制,让患者表示同意共享他们的数据。此外,新的IT技术使患者更容易控制其数据,包括撤销同意的权利。这些特征挑战了传统的基于纸张,单一组织主导的同意流程。燕尾数字同意书应用程序使用移动应用程序和基于区块链的基础架构来提供此功能,这是一项试验的一部分,该试验使患者能够在数字工具之间共享其数据,从而使患者能够在综合护理环境中管理其病情。

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