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2231 Research partnership community commitment and the people-to-people for Puerto Rico (#p2p4PUR) Movement: Researchers and citizens in solidarity

机译:2231研究伙伴关系社区承诺和波多黎各(#p2p4PUR)运动的人民对人民:团结一致的研究人员和公民

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摘要

OBJECTIVES/SPECIFIC AIMS: Island communities face greater environmental risks creating challenges in their populations. A community and participatory qualitative research method aiming to understand community perspectives regarding the ecology and environmental risks of the island of Culebra was performed to develop a community-centered Information and Communications Technology (ICT) intervention (an app). The island of Culebra, a municipality from the archipelago of Puerto Rico is located 17 miles from the eastern coast of Puerto Rico’s main island. This ICT—termed mZAP (Zonas, Acción & Protección)—is part of a Translational Biomedical doctoral degree dissertation housed at the University of Rochester’s Clinical Translational Science Institute (CTSI) Informatics Core funded by an NIH Clinical Translational Science Award (CTSA). In September 2017, the island of Culebra faced 2 major category hurricanes 2 weeks apart. Hurricane Irma and Hurricane Maria devastated homes, schools, health clinics, and local businesses, disrupting an already-fragile ecological balance on the island. METHODS/STUDY POPULATION: These 2 storms catastrophically affected the archipelago of Puerto Rico. Culebra’s geographically isolated location, along with the inefficient response from authorities, exacerbated the stressors caused by these natural disasters, increasing the gap of social determinants of health, including the lack of potable water. Leveraging a community engagement partnership established before the hurricanes by the mZAP participatory research, which naturally halted once the hurricanes hit a new humanitarian objective formed to deliver aid. Along with another NIH funded RCMI Translational Research Network, or RTRN institution (University of Puerto Rico, Medical Science Campus) students and faculty, The Puerto Rico Testsite for Exploring Contamination Threats Program (PROTECT) an NIEHS Funded Grant, and the National Guard, a “people to people” approach was established to ascertain needs and an opportunity to meet those needs. A people-to-people approach brings humanitarian needs, identified directly by the community to the people who need it most; without intermediaries and bureaucratic delays that typically occur during catastrophes. RESULTS/ANTICIPATED RESULTS: The consumption of potable water in plastic bottles and subsequent accumulation of plastic material has proven to be collateral damage of a vulnerable water distribution system creating another environmental hazard on the island of Culebra. Therefore, this humanitarian partnership, worked to delivered community and family sized water filters, providing a safe environmental alternative to drinkable water for the island. The success of this approach, People to People for Puerto Rico (#p2p4PUR), demonstrated the power of genuine community engagement—arising from a previous clinical research partnership—and true established commitment with members of the community. DISCUSSION/SIGNIFICANCE OF IMPACT: Research partnerships can (and should, when needed) lead to humanitarian partnerships that extend beyond research objectives. Research may subsequently be adapted based on new realities associated with natural disasters and the altered nature of existing partnerships, allowing for a rapid response to communities need. Further, #p2p4PUR was not only able to channel a partnership humanitarian response but also created an opportunity to reflect on how the commitment between members of society and academia (researchers) can create beneficial bilateral relationships, always putting the community needs first. The resulting shared experience elevates community interest and engagement with researchers, and helps researchers see communities as true partners, rather than—simply—research subjects.
机译:目标/特定目标:岛屿社区面临更大的环境风险,给其人口带来挑战。开展了旨在了解社区有关库莱布拉岛生态和环境风险的观点的社区和参与性定性研究方法,以开发以社区为中心的信息和通信技术(ICT)干预(应用程序)。库莱布拉岛(Culebra)是波多黎各群岛的一个直辖市,距波多黎各主岛东海岸17英里。这种称为mZAP(Zonas,Acción和Protección)的ICT是由美国国立卫生研究院临床转化科学奖(CTSA)资助的罗彻斯特大学临床转化科学研究所(CTSI)信息学核心所提供的转化生物医学博士学位论文的一部分。 2017年9月,库莱布拉岛遭遇了两周相隔2次的主要飓风。厄玛飓风和玛丽亚飓风摧毁了房屋,学校,诊所和当地企业,破坏了岛上本已脆弱的生态平衡。方法/研究人群:这两场风暴对波多黎各群岛造成了灾难性影响。库莱布拉(Culebra)地理位置偏僻,加上当局的反应不力,加剧了这些自然灾害造成的压力,加剧了健康问题社会决定因素的差距,包括缺乏饮用水。利用mZAP参与性研究在飓风之前建立的社区参与伙伴关系,一旦飓风达到了提供援助的新人道主义目标,该合作伙伴关系自然就停止了。与另一项由美国国立卫生研究院(NIH)资助的RCMI转化研究网络或RTRN机构(波多黎各大学,医学科学校园)的学生和教职员工一起,由波多黎各探索污染威胁计划试验场(PROTECT)取得了NIEHS资助,而国民警卫队(National Guard)建立了“人与人”的方法来确定需求和满足这些需求的机会。人与人之间的方法带来了社区直接确定的人道主义需求给最需要的人;避免了灾难期间通常发生的中介和官僚主义的拖延。结果/预期结果:塑料瓶中的饮用水消耗和随后塑料材料的积累被证明是脆弱的水分配系统的附带损害,在库莱布拉岛上造成了另一个环境危害。因此,这种人道主义伙伴关系致力于提供社区和家庭大小的滤水器,为该岛提供了安全的环境替代饮用水。这种方法的成功,即波多黎各人对人(#p2p4PUR),证明了真正的社区参与的力量(源于先前的临床研究合作伙伴关系)以及对社区成员的真正承诺。讨论的意义/意义:研究伙伴关系可以(并且应在需要时)导致超越研究目标的人道主义伙伴关系。随后可以根据与自然灾害相关的新现实以及现有合作伙伴关系的变化性质对研究进行调整,从而快速响应社区的需求。此外,#p2p4PUR不仅能够传达伙伴关系的人道主义对策,而且还提供了一个机会来反思社会成员与学术界(研究人员)之间的承诺如何建立有益的双边关系,始终将社区需求放在首位。由此产生的共享经验提高了社区对研究人员的兴趣和参与度,并帮助研究人员将社区视为真正的合作伙伴,而不是简单地将其视为研究主题。

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