In the Information Age do dementia caregivers get the information they need? Semi-structured interviews to determine informal caregivers’ education needs barriers and preferences

摘要

BackgroundMost patients with dementia or cognitive impairment receive care from family members, often untrained for this challenging role. Caregivers may not access publicly available caregiving information, and caregiver education programs are not widely implemented clinically. Prior large surveys yielded broad quantitative understanding of caregiver information needs, but do not illuminate the in-depth, rich, and nuanced caregiver perspectives that can be gleaned using qualitative methodology.