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Telling parents their child has severe congenital anomalies.

机译:告诉父母他们的孩子患有严重的先天性异常。

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摘要

A large number of potential malformations exist, but the key skills in communicating with the parents of a malformed baby are the same. Dissatisfaction is common in this situation and has prompted a national initiative in improving standards of disclosure of disability and malformation--the Right from the start strategy (see appendix). Key skills include keeping the family together, ie, not removing the baby unnecessarily, knowing how parents like to be informed, listening, checking that parents have understood, being nonderogatory and, most importantly, emphasizing the positive side of their newborn child.
机译:存在大量潜在的畸形,但是与畸形婴儿的父母沟通的关键技能是相同的。在这种情况下,不满是很普遍的现象,它促使国家提出了一项倡议,以提高对残疾和畸形的披露标准-从一开始就享有权利(见附录)。关键技能包括保持家庭团结,即不要不必要地移走婴儿,了解父母喜欢被告知的方式,倾听,检查父母是否理解,不贬损以及最重要的是强调新生儿的积极方面。

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