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Professional Bereavement Photography in the Setting of Perinatal Loss: A Qualitative Analysis

机译:围产期损失情况下的专业丧亲摄影:定性分析

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摘要

Perinatal loss, including fetal and infant death, is a devastating experience for parents, resulting in long-term adverse physical and psychosocial outcomes. However, little is known about what services might best support grieving parents. We aimed to understand the role of professional bereavement photography in assisting the grieving process of parents who have lost a fetus or infant, by examining the perspectives of bereaved parents, professional photographers, and health care professionals. Twenty semistructured interviews were conducted, and interview transcripts were analyzed using modified grounded theory. Twenty-three individuals participated, including 6 bereaved parents, 8 photographers, and 9 health care professionals. Analyses generated 5 major themes describing ways in which the photographs were valuable to parents: validation of the experience, permission to share, creation of a permanent and tangible legacy, creation of positive memories, and moving forward after the loss. Hospitals should consider incorporation of professional bereavement photography services into palliative care and bereavement programs.
机译:围产期丧失,包括胎儿和婴儿死亡,对父母来说是毁灭性的经历,导致长期不利的身体和社会心理后果。但是,对于什么服务可以最好地支持悲伤的父母知之甚少。我们的目的是通过研究失去亲人的父母,专业摄影师和医疗保健专业人员的观点,来了解专业丧亲摄影在协助失去胎儿或婴儿的父母的悲伤过程中的作用。进行了二十次半结构化访谈,并使用改进的扎根理论分析了访谈记录。有23人参加,其中包括6名丧亲的父母,8名摄影师和9名医疗保健专业人员。分析产生了5个主要主题,描述了照片对父母有价值的方式:验证经验,允许分享,建立永久和有形的遗产,创造积极的记忆以及在丢失后继续前进。医院应考虑将专业的丧亲摄影服务纳入姑息治疗和丧亲计划。

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